Arthritis Foundation News and Letters
The Arthritis Foundation is committed to advocating for legislation that makes treating and researching arthritis easier. Read about our advocacy efforts over the past couple years below.
2024
The Arthritis Foundation along with other patient support groups implore the enactment of PBM transparency and accountability reforms.
2023
April 13, 2023
The Arthritis Foundation joins 200+ other patient and provider groups championing the reintroduction of the Safe Step Act in the House.
January 31, 2023
AF introduces Ideal Model of Care in comment letters to the Biden Administration on Health Exchange plan standards and Essential Health Benefits
- Second Letter
AF introduces Ideal Model of Care in comment letters to the Biden Administration on Health Exchange plan standards and Essential Health Benefits, calling attention to the current challenges people with arthritis face in navigating insurance protocols and out-of-pocket costs.
January 27, 2023
Arthritis Foundation joins 76 NHC member organizations in a consensus statement on health equity
Arthritis Foundation joins 76 NHC member organizations in a consensus statement on health equity. We are committed to ending structural discrimination in the healthcare system, elevating patient voices, and developing a successful strategy for reform.
2022
First Quarter
January 1, 2022
2022 will see the continuation of the 117th Congress, state legislative sessions across 46 states, and mid-term elections. Both our federal and state policy work will focus on priorities that matter the most to people living with arthritis, such as pain management, access to telemedicine, out-of-pocket costs, and funding for research. Advocates are the heart of advancing each of these priorities. Our 2022 priorities fall into four main buckets, detailed in our 2022 Advocacy Priorities document.
January 31, 2022
The Arthritis Foundation joined 336 patient organizations in sending a multi-stakeholder letter to Congress, establishing a pathway for comprehensive telehealth reform. This letter includes the continuation of current telehealth waivers, assuring patients can easily access care during the COVID-19 public health emergency.
February 11, 2022
The Arthritis Foundation joined 28 patient organizations in sending a letter to Congressional Leadership encouraging a permanent expansion of ACA programs—ensuring that all patients will have access to comprehensive and affordable health care.
Second Quarter
May 24, 2022
The Arthritis Foundation joins 74 patient organizations in a letter to Congress urging the inclusion of step-therapy reform in a mental health care reform package.
Third Quarter
August 3, 2022
Arthritis Foundation joins 6 patient groups in a letter to Congressional leadership supporting Medicare Part D out-of-pocket prescription drug caps, ACA subsidy extensions, and other critical health provisions in the Inflation Reduction Act.
Fourth Quarter
Patient Groups Urge U.S. District Court to Preserve Preventive Services Coverage Requirement
Repealing No-Cost Prevention Would Harm Public Health
December 15, 2022
How Arthritis Is Threatening the U.S. Military
The Arthritis Foundation updates the DoD arthritis research executive summary.
2021
First Quarter
March 31, 2021
Arthritis Foundation Joins Other Patient Organizations in Support of Washington Telehealth bill
The Arthritis Foundation joined 9 other patient organizations in support of ESHB 1196 which would expand use of telehealth in Washington.
March 31, 2021
The Arthritis Foundation sent a letter in support of House Bill 1569 to Arkansas Senate Committee on Insurance & Commerce. This important bill will ensure that all copays count!
March 30, 2021
The Arthritis Foundation sent a letter in support for Senate Bill 682 to members of the Senate Committee on Health. This important bill would organize a study to reduce racial disparities in health outcomes fro chronic conditions affecting children.
March 26, 2021
The Arthritis Foundation sent a letter in support of House Bill 2678 to the Oklahoma Senate Committee on Health & Human Services. This important bill will ensure that all copays count!
March 26, 2021
The Arthritis Foundation sent a letter in support for Senate Bill 1397 to the Tennessee Senate Committee on Commerce & Labor. This important bill will ensure that all copays count!
March 25, 2021
The Arthritis Foundation joined 8 other patient groups in sending a letter to Kansas Senate Financial Affairs and Insurance Committee with concerns regarding Senate Bill 199. The concerns centered around how short-term limited duration policies do no provide comprehensive coverage, do not provide cost-effective coverage, especially for major illnesses, and do not ensure stability.
March 23, 2021
The Arthritis Foundation joined with 28 other patient and provider organization in sending a letter of support for Illinois House Bill 1745 to Majority Leader Greg Harris. This important bill will help patient afford their vital medications.
March 23, 2021
The Arthritis Foundation sent a letter in support for Senate Bill 45 to Kentucky Governor Andy Beshear. This important bill will ensure that all copays count!
March 22, 2021
The Arthritis Foundation joined other patient advocacy organizations in a statement for the record to the House Energy & Commerce Committee. The statement expresses support for the Committee's continued work on policies the impact patients.
March 20, 2021
The Arthritis Foundation sent a letter in support for House Bill 129 to New Mexico House. This important bill will ensure that all copays count!
March 19, 2021
The Arthritis Foundation sent a letter in support of House Bill 129 to New Mexico Senate. This important bill will ensure that all copays count!
March 17, 2021
The Arthritis Foundation joined 6 other patient organizations in support of ESSB 5337, Cascade Care 2.0. The subsidies for health insurance premiums and cost-sharing in ESSB 5377 represent the most significant step the legislature has taken to increase access to health care since the passage of the Affordable Care Act (ACA) and the expansion of Medicaid.
March 16, 2021
The Arthritis Foundation sent a letter in support of House Bill 1569 to Arkansas House Committee on Insurance & Commerce. This important bill will ensure that all copays count!
March 15, 2021
The Arthritis Foundation sent a letter in support of Senate Bill 80 to the Georgia House Insurance Committee. This bill will help patients continually access their vital medications while also help lessen the burden on health care providers.
March 15, 2021
The Arthritis Foundation sent a letter of support for Illinois House Bill 1745 to Illinois House Prescription Drug Affordability & Accessibility Committee. This important bill will help patient afford their vital medications.
March 13, 2021
The Arthritis Foundation sent a letter in support of House Bill 129 to New Mexico Senate Judiciary Committee. This important bill will ensure that all copays count!
March 12, 2021
The Arthritis Foundation sent a letter of support for Assembly Bill 933 to the California Assembly Committee on Health. This bill would pass a percentage of rebates received by insurers onto the patients to make medications more affordable at the point of sale.
March 9, 2021
Arthritis Foundation Joins Other Patient Organizations in Letter to Virginia Governor Northam
The Arthritis Foundation joined 15 other patient groups in a letter asking Virginia Governor Ralph Northam to sign House Bill 2332 into law. This bill would enact a reinsurance program, which has proven to reduce premiums and can also draw new insurers to the marketplace.
March 5, 2021
The Arthritis Foundation proudly submitted a letter to the Illinois House Human Services Committee in support of House Bill 711. This bill would reform prior authorization in the state.
March 2, 2021
Arthritis Foundation Submits Letter in Support of California Prior Authorization Gold Carding Bill
The Arthritis Foundation submitted a letter to the California Senate Committee on Health relating to Senate Bill 250, which would relieve physicians form repetitively submitting a prior authorization for a period of two year if their utilization history is typical of other physicians within their same specialty.
February 26, 2021
Arthritis Foundation Endorses All Copays Count Coalition’s Accumulator Model Language
The Arthritis Foundation joined more than 30 other patient and provider organizations, including the American Medical Association, in endorsing state model legislation, similar to language that has been enacted in 5 states so far. Many more states are expected to follow in 2021.
February 26, 2021
The Arthritis Foundation proudly submitted a support letter for House Bill 2517 to members of the Oregon House Committee on Health Care. This important bill would reform utilization management protocols, such as step therapy and prior authorization, in Oregon.
February 25, 2021
The Arthritis Foundation joined 9 other patient groups in a letter to the Kansas Senate Finical Affairs and Insurance Committee with concerns about Senate Bill 199, which would expand the availability of short-term limited duration plans.
February 22, 2021
The Arthritis Foundation proudly submitted testimony in support of House File 633, which will help patients afford their crucial medications, to members of the Minnesota House Commerce Finance and Policy Committee. In addition, the Arthritis Foundation joined 11 other patient and provider organization in a sign-on letter in support of the bill.
February 21, 2021
The Arthritis Foundation joined the Medicare Access for Patients Rx (MAPRx) Coalition in submitting a letter to Health & Human Services opposing changes related to the Part D Modernization Payment Model for plan year 2022. Link to web story.
February 19, 2021
The Arthritis Foundation joined 9 other patient groups in a letter to the Ohio Senate Government Oversight and Reform Committee with concerns about Ohio Senate Bill 17, which would make Medicaid coverage contingent on reporting work.
February 18, 2021
The Arthritis Foundation proudly submitted testimony on Senate Bill 560, which will ensure that all copays count.
February 15, 2021
The Arthritis Foundation proudly submitted testimony on House Bill 2678, which will ensure that all copays count.
February 14, 2021
Arthritis Foundation Joins Other Patient Organizations In Letter on South Dakota Senate Bill 87
The Arthritis Foundation joined 9 other patient groups in a letter to South Dakota Governor Kristi Noem asking her to veto Senate Bill 87. The groups expressed concerns about the bill, specifically, that the bill would expanding access to limited plans offered through nonprofit agricultural organizations would not provide consumers with the coverage that they need to stay healthy and it threatens the stability of the individual marketplace.
February 12, 2021
The Arthritis Foundation proudly submitted testimony on Senate Bill 45, which will ensure that all co-pays count.
February 12, 2021
Arthritis Foundation Joins 310+ Organizations in Signing Letter Urging Congressional Leadership
Arthritis Foundation joined more than 300 organizations in a letter urging Congressional leadership to support increased and sustained annual funding for state, local, tribal, and territorial public health infrastructure.
February 12, 2021
Arthritis Foundation as part of the All Copays Count Coalition Submitted a Letter to HHS
Arthritis Foundation, as part of the All Copays Count Coalition, submitted a letter to HHS regarding the 2021 NBPP and urging the Administration to ban co-pay accumulator adjustment programs and require certain changes to patient out-of-pocket costs.
February 11, 2021
The Arthritis Foundation proudly submitted testimony on Senate Bill 92, which will ensure that all copays count.
February 10, 2021
The Arthritis Foundation Submits Testimony to the House Ways & Means Committee
The Arthritis Foundation joined 30+ organizations in submitting testimony to the House Ways & Means Committee regarding the markup of COVID-19 relief measures.
February 8, 2021
The Arthritis Foundation submitted a letter to the Maryland Senate Finance Committee in support of legislation to address accumulator adjustment programs.
February 7, 2021
The Arthritis Foundation Submits Coalition Letter on Potential Commissioner of the FDA
The Arthritis Foundation submitted a coalition letter to express strong support for Dr. Janet Woodcock for consideration and potential nomination as Commissioner of the FDA.
February 4, 2021
The Arthritis Foundation proudly submitted testimony on House Bill 129, which will ensure that all copays count.
February 3, 2021
The Arthritis Foundation proudly submitted testimony on Senate Bill 154, which will ensure that all copays count.
February 1, 2021
The Arthritis Foundation joined 28 Patient Organizations in a letter to Congressional leadership expressing patient community priorities for COVID-19 legislation.
February 1, 2021
Arthritis Foundation joined 29 organizations in submitting a letter to Congressional leadership In support of patient-centered priorities to consider in budget reconciliation.
February 1, 2021
Arthritis Foundation Submits Testimony on Kansas Step Therapy Reform Bill
The Arthritis Foundation proudly submitted testimony on House Bill 2157, which would reform step therapy in Kansas.
January 29, 2021
Arthritis Foundation joined 33 patient organizations in letter to the Biden Administration applauding strong actions to protect people with pre-existing conditions in 2 Executive Orders issued by the President.
January 29, 2021
The Arthritis Foundation proudly submitted testimony on Senate Bill 1270, which would reform step therapy in Arizona.
January 27, 2021
The Arthritis Foundation proudly submitted testimony on LB 337, which would reform step therapy in Nebraska.
January 19, 2021
The Arthritis Foundation proudly submitted testimony on Senate Bill 99, which would reform step therapy in Arkansas.
January 18, 2021
The Arthritis Foundation proudly submitted testimony on House Bill 167, which will ensure that all copays count.
January 12, 2021
The Arthritis Foundation proudly submitted testimony on legislation that would create an arthritis quality of life initiative and advisory council in the state of New Jersey. A 2304, alongside S 1991, would ensure that the state is tackling the leading cause of disability, arthritis.
January 1, 2021
Arthritis Foundation Creates FAQ to Educate Patients on No Surprises Act
On December 28, 2020, the No Surprises Act became law. The Arthritis Foundation spent nearly two years supporting and fighting for legislation to protect patients from surprise medical bills. Here is what you need to know about the law and what it means for arthritis patients.
Second Quarter
June 30, 2021
The Arthritis Foundation sent a letter of support for Senate Bill 568 to members of the California Assembly Committee on Health. This bill would prohibit an insurer from imposing a deductible requirement for chronic disease patients.
June 22, 2021
The Arthritis Foundation sent a letter in support of Senate Bill 225 to the Pennsylvania Senate Banking & Insurance Committee. This important bill will help patients gain access to their vital medications in a timely manner and lessen the burden on health care providers.
June 17, 2021
Arthritis Foundation Applauds Supreme Court Ruling to Uphold the Affordable Care Act
On Thursday the Supreme Court threw out a lawsuit that challenged the Affordable Care Act (ACA). The Arthritis Foundation issued a statement along with a letter of support from 33 other patient advocacy organizations .
June 15, 2021
The Arthritis Foundation joined 7 other patient organizations asking Texas Governor Greg Abbot to veto House Bills 3924 and 3752. These bills would permission to cherry-pick healthy customers and discriminate against Texans who have histories of illness – something health insurers are not allowed to do. Vetoing these bills would maintain the stability of the individual health insurance market and meaningful access to comprehensive coverage for people with pre-existing conditions.
June 15, 2021
The Arthritis Foundation joined 13 other patient organizations asking key legislators to remove Section 5163.52 form HB 110, which contains budget proposals. This section requires the Ohio Department of Medicaid to complete an eligibility redetermination process within sixty days of the expiration f the public health emergency. The groups wrote that a redetermination process that prioritizes speed over accuracy could unfairly remove some patients from the program or lead to other erroneous decisions that have costly or life-threatening consequences.
June 11, 2021
Arthritis Foundation Submits Letter to the Illinois Governor in Support of Prior Authorization Bill
The Arthritis Foundation sent a letter in support of House Bill 711 to Illinois Governor J.B. Pritzner. HB 711 has passed both the Illinois Senate and House and now sits on the Governor’s desk. This important bill will help patients gain access to their vital medications in a timely manner and lessen the burden on health care providers.
June 11, 2021
Arthritis Foundation Submits Letter to the Illinois Governor in Support of Out-of-Pocket Cost Bill
The Arthritis Foundation sent a letter in support of House Bill 1745 to Illinois Governor J.B. Pritzner. This important bill will help patients afford their vital medications.
June 9, 2021
Arthritis Foundation Joins Coalition Letter on No Surprises Act Interim Final Rule
The Arthritis Foundation joined other organizations in a letter to key committees outlining recommendations for the forthcoming No Surprises Act interim final rule. The No Surprises Act was enacted in December 2020, and this is a step toward implementation in 2022.
June 2, 2021
The Arthritis Foundation sent a letter in support of Senate Bill 94 to Louisiana Governor John Bel Edwards. This important bill will ensure that all copays count!
May 27, 2021
The Arthritis Foundation sent a letter in support for Senate Bill 1003 to Connecticut Governor Ned Lamont. This important bill will ensure that all copays count!
May 26, 2021
The Arthritis Foundation joined with 7 other patient organizations in a letter to key Connecticut Senators in support of House Bill 6622. This bill would restrict an insurer from changing a formulary during the middle of a plan year.
May 26, 2021
The Arthritis Foundation sent a letter in support for Senate Bill 94 to members of the Louisiana House. This important bill will ensure that all copays count!
May 25, 2021
The Arthritis Foundation joined 7 other patient groups in sending a letter to Wisconsin Senate Committee on Insurance, Licensing and Forestry with concerns regarding Senate Bill 247. The concerns centered around how short-term limited duration policies do no provide comprehensive coverage, do not provide cost-effective coverage, especially for major illnesses, and do not ensure stability.
May 25, 2021
The Arthritis Foundation sent a letter of support for Senate Bill 497 to members of the Rhode Island Senate Health & Human Services Committee. This important bill would add transparency for patients by ensuring that a pharmacist or pharmacy may not restrict or penalize a pharmacist disclosure of cost information to a patient.
May 25, 2021
Arthritis Foundation Submits Letter to California Senate in Support of Out-of-Pocket Cost Bill
The Arthritis Foundation sent a letter of support for Senate Bill 568 to members of the California Senate. This bill would prohibit an insurer from imposing a deductible requirement for chronic disease patients.
May 24, 2021
The Arthritis Foundation sends a letter to members of the Ohio House Insurance Committee in support of House Bill 153. This bill would restrict an insurer from changing a formulary during the middle of a plan year.
May 18, 2021
The Arthritis Foundation sent a letter in support of Senate Bill 94 to members of the Louisiana House Insurance Committee. This important bill will ensure that all copays count!
May 12, 2021
The Arthritis Foundation sends a letter to members of the Ohio House Insurance Committee in support of House Bill 153. This bill would restrict an insurer from changing a formulary during the middle of a plan year.
May 10, 2021
The Arthritis Foundation sent a letter in support for Senate Bill 859 to members of the Rhode Island Senate Committee on Health & Human Services. This important bill will ensure that all copays count!
May 5, 2021
The Arthritis Foundation joined with 7 other patient organizations in a letter to key members of the Connecticut House in support of House Bill 6622. This bill would restrict an insurer from changing a formulary during the middle of a plan year.
May 3, 2021
The Arthritis Foundation sent a letter in support of Senate Bill 94 to members of the Louisiana Senate Insurance Committee. This important bill will ensure that all copays count!
April 30, 2021
The Arthritis Foundation sent a letter in support of House Bill 711 to the Illinois Senate Committee on Insurance. This important bill will help patients gain access to their vital medications in a timely manner and lessen the burden on health care providers.
April 30, 2021
The Arthritis Foundation sent a letter in support of House Bill 619 to Tennessee Governor Bill Lee. This important bill will ensure that all copays count!
April 28, 2021
The Arthritis Foundation sent a letter in support of Senate Bill 560 to members of the Oregon House Committee on Health Care. This important bill will ensure that all copays count!
April 26, 2021
The Arthritis Foundation sent a letter in support of Senate Bill 2517 to the Oregon Senate Committee on Health Care. This important bill will help patients gain access to their vital medications in a timely manner and lessen the burden on health care providers.
April 26, 2021
The Arthritis Foundation sent a letter in support of Assembly Bill 1741 to members of the New York Assembly Insurance Committee. This important bill will ensure that all copays count!
April 26, 2021
The Arthritis Foundation sent a letter in support of Senate Bill 647 & Senate Bill 302 to the Rhode Island Senate Committee on Health & Human Services. This important bill will help patients gain access to their vital medications in a timely manner and lessen the burden on health care providers.
April 23, 2021
Arthritis Foundation Submits Letter to the Chair of the Rhode Island Step Therapy Commission
The Arthritis Foundation sent a letter to the Chair of the Rhode Island Step Therapy Commission in support of moving forward on step therapy reform in the state. The Arthritis Foundation serves on this very important commission and looks forward to completing the work of the commission so that legislation to reform step therapy can be advanced in the House.
April 21, 2021
The Arthritis Foundation sent a letter in support of House Bill 907 to the Texas Senate Business and Commerce Committee. This important bill ensures that a health plan that provides prescription drug benefits many not require a patient to receive more than one prior authorization annually for a prescription drug to treat an autoimmune diseases. This bill will help patients continually access their vital medications while also help lessen the burden on health care providers.
April 20, 2021
The Arthritis Foundation sent a letter in support of House Bill 1569 to Arkansas Governor Asa Hutchinson. This important bill will ensure that all copays count!
April 13, 2021
The Arthritis Foundation sent a letter in support of House Bill 2678 to Oklahoma Governor Kevin Stitt. This important bill will ensure that all copays count!
April 12, 2021
The Arthritis Foundation sent a letter in support of Senate Bill 3051 to the New Jersey Senate Commerce Committee. This important bill will help patients gain access to their vital medications in a timely manner and lessen the burden on health care providers.
April 11, 2021
The Arthritis Foundation sent a letter in support of House Bill 751 to the Missouri House Committee on Health & Mental Health Policy. This important bill will help patients gain access to their vital medications in a timely manner and lessen the burden on health care providers.
April 9, 2021
The Arthritis Foundation sent a letter in support of Senate Bill 250 to the California Senate Committee on Appropriations. This important bill will help patients gain access to their vital medications in a timely manner and lessen the burden on health care providers. Superficially, SB 250 would allow health care providers, based upon their preceding 12 month history, to earn a “gold card” or an “deemed approved” status for 2 years, meaning exemption from utilization review process.
April 9, 2021
The Arthritis Foundation sent a letter in support of House Bill 2668 to members of the Texas House Insurance Committee. This important bill will ensure that all copays count!
April 7, 2021
The Arthritis Foundation sent a letter of support for Senate Bill 568 to members of the California Senate Committee on Health. This bill would prohibit an insurer from imposing a deductible requirement for chronic disease patients.
April 6, 2021
The Arthritis Foundation joined 11 other organizations in signing onto a letter in support of out of pocket cost language in the Minnesota Health Finance Policy Committee’s ominous bill, House File 2128. The language included will help patients afford their vital medications.
April 6, 2021
The Arthritis Foundation sent a letter in support certain language in Senate Bill 227 to members of the Texas House Insurance Committee. This important language will ensure that all copays count!
April 6, 2021
Arthritis Foundation Joins Other Organizations in Calling for California to Invest in Public Health
The Arthritis Foundation joined in a letter signed by numerous organizations in support of more than $200 million of ongoing funding for local public health departments and infrastructure. This letter was part of the #CACantWait effort.
April 2, 2021
The Arthritis Foundation sent a letter in support of House Bill 2678 to Oklahoma Senate. This important bill will ensure that all copays count!
Third Quarter
September 30, 2021
Arthritis Foundation Submits Letter to Michigan Senate Committee on Health Policy & Human Services Chair Asking Him to Advance Accumulator Adjustment Program Legislation
The Arthritis Foundation sent a letter to Senate Committee on Health Policy & Human Services Chair Curt VanderWall asking him to advance House Bill 4353. The legislation will prohibit accumulator adjustment programs and ensure that all copays count.
September 25, 2021
Arthritis Foundation Advocates for Patients in Congressional Budget Reconciliation Package
The Arthritis Foundation has been hard at work ensuring arthritis patients are at the center of Congress' budget reconciliation package. The Foundation has joined numerous organizations in letters to leadership regarding important facets of the reconciliation package, including the Safe Step Act, out-of-pocket costs, and other patient health care priorities.
September 15, 2021
Arthritis Foundation Submits Letter to California Governor Asking Him to Sign the Utilization Management Legislation
The Arthritis Foundation sent a letter to California Governor Gavin Newsom in support of his signature of Assembly Bill 347. A proud sponsor of the bill, AB 347 would streamline step therapy and prior authorization in the state of California.
September 9, 2021
Arthritis Foundation Joins Other Patient Organizations in Letter to HHS Secretary Regarding Tennessee’s TennCare Demonstration Waiver
The Arthritis Foundation joined 20 other patient organizations in a letter to Health & Human Services Secretary Xavier Becerra regarding Tennessee’s TennCare Demonstration Waiver. The groups had concerns about the waiver’s funding structure, closed formulary, 10-year approval, and the waving of retroactive coverage.
September 8, 2021
Arthritis Foundation Joins Other Patient Organizations in Opposition Letter to Wisconsin Senators Regarding the State’s Short-Term Limited Duration Health Plan Legislation
The Arthritis Foundation joined 7 other patient organization in submitting an opposition letter to Senate Bill 247 to Wisconsin Senators. This bill would expand the availability of short-erm, limited duration (STLD) health plans in the state. STLD plans offer limited coverage and benefits, and are not required to have the same consumer protections as other plans.
August 30, 2021
Arthritis Foundation Joins Other Patient Organizations in Letter to HHS Secretary Regarding Texas’ Healthcare Transformation and Quality Improvement Program - Extension Request Demonstration.
The Arthritis Foundation joined 17 other patient organizations in a letter to Health & Human Services Secretary Xavier Becerra regarding to Texas Healthcare Transformation and Quality Improvement Program - Extension Request Demonstration. The groups had concerns about the uncompensated care pols and Medicaid expansion, 10-year approval, and transparency around the notice and comment period for the 1115 Demonstration waiver.
August 16, 2021
The Arthritis Foundation sent a letter in support of language within Senate Bill 257 to members of the North Carolina House Health Committee. This important bill will ensure that all copays count!
August 12, 2021
Arthritis Foundation Joins Coalition Letter Commenting on Implementation of the No Surprises Act
The Arthritis Foundation joined 20 other patient organizations in comments on documents related to the implementation of the No Surprises Act. Comments include topics such as standard notice and consent, complaints processes, model disclosures, and their supporting statements.
August 4, 2021
The Arthritis Foundation sent a letter in support for Assembly Bill 184 to Wisconsin Assembly Speaker Robin Vos. This important bill will ensure that all copays count!
July 15, 2021
Arthritis Foundation Submits Letter Relating to California Health Care Quality and Affordability Act
The Arthritis Foundation appreciated the work that members of the California State Legislature have done and continue to do on behalf of Californians with chronic diseases, including those with arthritis. The Arthritis Foundation urges legislators to ensure that the California Health Care Quality and Affordability Act does not open the door for use of Quality-Adjusted Life Years (QALYs) in determining long-term value of treatments
July 14, 2021
Arthritis Foundation Joins Coalition Letter Applauding No Surprises Act Interim Final Rule
The Arthritis Foundation joined 26 patient and consumer organizations in a letter applauding the Biden administration’s rule implementing the No Surprises Act. The No Surprises Act, legislation to ban surprise medical billing, was enacted in December 2020. The interim final rule outlines a plan for implementation in 2022 that includes robust safeguards for patients and consumers.
July 9, 2021
Arthritis Foundation jointed 19 other patient groups in submitting a comment letter to the Tennessee Division of TennCare, the state’s Medicaid program. The groups expressed concern regarding TennCare’s Section 115 waiver approval. Specifically, the groups had concerns with the new TennCare policy to implement a closed formulary, approval of the waiver for 10-years, removal of retroactive eligibility, and problems with the previous public comment period.
July 8, 2021
The Arthritis Foundation sent a letter in support of Senate Bill 756 and House Bill 1311 to the Massachusetts Joint Committee on Health Care Financing. This important bill will help patients gain access to their vital medications in a timely manner and lessen the burden on health care providers.
Fourth Quarter
Arthritis Foundation Joins Other Patient Organizations in Letter to HHS Secretary Relating to the Kansas Continuous Eligibility Amendment
The Arthritis Foundation joined 15 patient organizations in sending a letter to Health and Human Services Secretary Xavier Becerra urging the approval of Kansas’ 1115 waiver amendment to provide 12-month continuous eligibility to parents and caretakers relatives enrolled in the Medicaid program.
November 4, 2021
Arthritis Foundation Joins Other Patient Organizations in Letter to CMS Administrator Regarding Standardized Plans
The Arthritis Foundation joined 7 patient organizations in a letter to CMS Administrator Chaquita Brooks-LaSure in support for standardized health plan options in the Health Insurance Marketplaces, with a focus on prescription drug access and affordability.
October 13, 2021
Arthritis Foundation Joins Patient and Provider Organizations in Letter to New York Governor in Support of Mid-Year Formulary Changes Legislation
The Arthritis Foundation joined 65 other patient and provider organizations in a letter to New York Governor Kathy Hochul in support of S.4111 and A.4668. These important bill will prohibit an insurer from removing a medication from their formulary mid-year.
October 20, 2021
Arthritis Foundation Joins Patient Organizations in Letter to the Colorado Insurance Commissioner Regarding the State’s Standard Option Health Benefit Plan
The Arthritis Foundation joined 8 other patient organizations in submitting comments to Colorado Insurance Commissioner Mike Conway regarding Colorado’s Standard Option Health Benefit Plan. The comments focused on ensuring that the plan had manageable out-of-pocket costs for patients, improved network adequacy, and improved network standards and promotion of nondiscrimination standards to advance health equity.
2020
First Quarter
March 31, 2020
Rheumatology Advocates Urge State Legislators and Pharmacy Boards to Respond to Hydroxychloroquine Concerns
With the drugs hydroxychloroquine (HCQ) and chloroquine under investigation as potential treatments for COVID-19, advocates are concerned about the continued availability of these drugs for conditions like rheumatoid arthritis and lupus. The Arthritis Foundation joined 53 organizations in a letter to US governors, lieutenant governors, insurance commissioners and pharmacy boards this week urging action to ensure patient access to HCQ for FDA-approved indications.
March 30, 2020
Letter Sent to Health and Human Services Regarding Protections for People with Pre-Existing Conditions
The Arthritis Foundation and patient community sent a letter to the Department of Health and Human Services with additional recommendations for protecting people with pre-existing conditions during the COVID-19 pandemic. Recommendations included providing a special enrollment period for the healthcare.gov insurance marketplace, enhancing financial protections and coverage for COVID-19 testing, ensuring the supply of essential medications, and reducing barriers to Medicaid coverage and enrollment.
The Arthritis Foundation, in partnership with the Lupus Foundation of America, sent a letter to each State Board of Pharmacy in regards to Hydroxychloroquine availability. The letter urges Boards to take action in order to preserve the ability of people with RA and lupus to access the medications they need to fight their disease.
March 23, 2020
Arthritis Foundation and Several Organizations Send Joint Statement on Hydroxychloroquine Availability to Vice President Pence
Hydroxychloroquine and Chloroquine are under investigation as potential treatments for Coronavirus (COVID-19). Hydroxychloroquine is a medication that has proven successful for treating rheumatoid arthritis and lupus for decades. This statement urges the federal government to work with the broader health care community to help ensure continued availability of these drugs for the patients who are maintained on them.
March 20, 2020
Patient Organizations Urge House of Representatives to Consider Access to Medication and Supplies for Patients
The Arthritis Foundation joined 95 patient organizations in a letter to Speaker Pelosi and House Leaders to strongly encourage the inclusion of provisions regarding access to medications and supplies for people of all ages in the next legislative package.
The Arthritis Foundation joined 213 patient organizations in the letter, which urges the House to also include nonprofit patient advocacy community-based organizations within any federal aid packages or supplemental appropriations measures.
March 16, 2020
Patient Organizations Urge Senate to take Measures to Slow Spread of COVID-19
The Arthritis Foundation and 27 organizations, representing millions of patients and consumers across the country who face serious, acute, and chronic health conditions, urge the Senate to act decisively to slow the spread of the COVID-19 virus, particularly among vulnerable populations. People with pre-existing conditions are at increased risk of infection and adverse health outcomes from COVID-19.
Second quarter
June 12, 2020
Arthritis Foundation Comments on New Hampshire’s Reinsurance Waiver Proposal
The Arthritis Foundation joined 9 organizations in submitting comments to the federal Department of Health and Human Services and the Department of Treasury on the state of New Hampshire’s 1332 state innovation waiver. The waiver seeks allows New Hampshire to create a reinsurance program. Reinsurance is an important tool to help stabilize health insurance markets. Reinsurance programs help insurance companies cover the claims of very high-cost enrollees, which in turn keeps premiums affordable for other individuals buying insurance on the individual market.
June 8, 2020
Arthritis Foundation Comments on CDC Request for Information on Pain and Pain Management
On June 8, the Arthritis Foundation submitted comments to the Centers for Disease Control and Prevention (CDC) concerning perspectives on and experiences with pain and pain management. The Foundation’s comments focused on our findings in the report, A Mandate for Action, the results from a recent osteoarthritis (OA) patient survey, and the OA guidelines we developed alongside the American College of Rheumatology last year.
June 4, 2020
CDC Arthritis Coalition Urges Congress to Provide Robust Funding for CDC Arthritis Program
On June 4, the CDC Arthritis Coalition sent letters to House and Senate Appropriations Committee leaders requesting a strong allocation for the Arthritis Program. It’s time for arthritis research and funding to match the disease burden.
May 29, 2020
Federal Step Therapy Coalition Calls for Further Measures to Address Use of Step Therapy in Medicare
On May 29, the Arthritis Foundation joined patient and provider organizations in a letter to the Centers for Medicare and Medicaid (CMS) thanking the agency for taking actions to support patients during the coronavirus pandemic. The letter also calls for additional measures to lessen administrative burdens on patients and providers.
May 29, 2020
Arthritis Foundation Requests Funding for Pediatric Subspecialty Loan Repayment Program
On May 29, the Arthritis Foundation sent a letter to House and Senate Appropriations Committee leaders urging strong funding for the pediatric subspecialty loan repayment program. In the first coronavirus relief bill last March, Congress re-authorized the program for the first time in several years. The letter calls on Congress to build on this momentum by providing initial funding for the program.
May 29, 2020
Federal Step Therapy Coalition Calls for Further Measures to Address Use of Step Therapy in Medicare
On May 29, the Arthritis Foundation joined patient and provider organizations in a letter to the Centers for Medicare and Medicaid (CMS) thanking the agency for taking actions to support patients during the coronavirus pandemic. The letter also calls for additional measures to lessen administrative burdens on patients and providers.
May 29, 2020
Arthritis Foundation Requests Funding for Pediatric Subspecialty Loan Repayment Program
On May 29, the Arthritis Foundation sent a letter to House and Senate Appropriations Committee leaders urging strong funding for the pediatric subspecialty loan repayment program. In the first coronavirus relief bill last March, Congress re-authorized the program for the first time in several years. The letter calls on Congress to build on this momentum by providing initial funding for the program.
The Arthritis Foundation has heard from thousands of patients through our helpline, survey research, the Live Yes! Arthritis Network and our story bank regarding health care challenges they are facing during this pandemic. Based on this collective data, we submitted suggestions for consideration in the next coronavirus relief package, addressing three broad priorities:
- Increased focus on access to care issues, including both administrative and out-of-pocket concerns, regarding medications, treatments, and services
- Improved solutions for health coverage, including telehealth
- Continued concerns about the impact of the pandemic on the health care workforce
The Arthritis Foundation has heard from thousands of patients through our helpline, survey research, the Live Yes! Arthritis Network and our story bank regarding health care challenges they are facing during this pandemic. Based on this collective data, we submitted suggestions for consideration in the next coronavirus relief package, addressing three broad priorities:
- Increased focus on access to care issues, including both administrative and out-of-pocket concerns, regarding medications, treatments, and services
- Improved solutions for health coverage, including telehealth
- Continued concerns about the impact of the pandemic on the health care workforce
April 23, 2020
A National Public Health Agenda For Osteoarthritis: 2020 Update
The Arthritis Foundation (AF), Osteoarthritis Action Alliance (OAAA), and Centers for Disease Control and Prevention (CDC) have developed A National Public Health Agenda for Osteoarthritis: 2020 Update to address the high prevalence of osteoarthritis (OA), its rising health impact and growing economic consequences. The 2020 Update is guided by the vision, goals, and guiding principles set forth in 2010 but is also focused on current public health practices and engaging a wide community of stakeholders.
April 23, 2020
A National Public Health Agenda For Osteoarthritis: 2020 Update
The Arthritis Foundation (AF), Osteoarthritis Action Alliance (OAAA), and Centers for Disease Control and Prevention (CDC) have developed A National Public Health Agenda for Osteoarthritis: 2020 Update to address the high prevalence of osteoarthritis (OA), its rising health impact and growing economic consequences. The 2020 Update is guided by the vision, goals, and guiding principles set forth in 2010 but is also focused on current public health practices and engaging a wide community of stakeholders.
April 23, 2020
Arthritis Foundation Joins Dozens of Patient and Consumer Organizations in Letter to Congress on Key Access Issues
On April 23, the Arthritis Foundation joined a letter to Congressional leadership that encourages Congress to build on past bipartisan efforts and ensure all individuals have equitable access to testing and treatment for COVID-19; equip states and localities with sufficient financial support to combat the crisis; provide protection and support to the health care workforce and others on the frontlines of the pandemic; assure access and capacity in the health system; and protect against high and unexpected health care costs.
April 23, 2020
Arthritis Foundation Joins Dozens of Patient and Consumer Organizations in Letter to Congress on Key Access Issues
On April 23, the Arthritis Foundation joined a letter to Congressional leadership that encourages Congress to build on past bipartisan efforts and ensure all individuals have equitable access to testing and treatment for COVID-19; equip states and localities with sufficient financial support to combat the crisis; provide protection and support to the health care workforce and others on the frontlines of the pandemic; assure access and capacity in the health system; and protect against high and unexpected health care costs.
April 22, 2020
No Surprises Coalition Urges Lawmakers to Address Surprise Medical Billing
On April 22, the Arthritis Foundation joined 16 organizations in a letter to Congressional leadership urging a comprehensive solution on surprise medical billing. The letter encourages Congress to protect families from further financial uncertainty as they seek health care services by banning surprise out-of-network bills in the next novel coronavirus (COVID-19) response.
April 20, 2020
Arthritis Foundation Emphasizes Access to Medication in Letter to Key Policymakers
The Arthritis Foundation joined patient and provider advocacy groups to urge Congress to ensure that all patients have access to needed medications during this crisis. Access to medications – both those provided by the pharmaceutical manufacturers and those provided by pharmacists through compounding – are critical to caring for patients with COVID-19, and separately for those patients living with chronic conditions who utilize medications that are now in short supply due to ongoing drug shortages.
April 15, 2020
Arthritis Foundation Joins Dozens of Organizations to Call for a Focus on CDC and NIH in Next Coronavirus Relief Legislation
On April 15, the Arthritis Foundation joined patient advocacy organizations in a letter to Congressional leadership. The letter urges Congress to establish a targeted fund at the CDC to support disease-specific coronavirus information for chronic illness communities, and bridge funding for the NIH to support the broad medical research community during the pandemic.
April 14, 2020
Arthritis Foundation joins the Partnership to Protect Coverage in Letter to Address Congress’ Phase 4 Stimulus Bill
The letter was cosigned by 33 organizations urging Congress to enact legislation that will help support the health and wellbeing of the American public while also slowing the spread of the COVID-19 virus, particularly among vulnerable populations.
April 14, 2020
Arthritis Foundation joins the Partnership to Protect Coverage in Letter to Address Congress’ Phase 4 Stimulus Bill
The letter was cosigned by 33 organizations urging Congress to enact legislation that will help support the health and wellbeing of the American public while also slowing the spread of the COVID-19 virus, particularly among vulnerable populations.
April 13, 2020
Arthritis Foundation Joins Alliance for Aging Research in Letter to HHS Office of Civil Rights
The Arthritis Foundation joined the Alliance for Aging Research to urge the HHS Office of Civil Rights to be more explicit about how medical resources should be fairly allocated during the pandemic in order to avoid unlawful discrimination.
April 8, 2020
Nonprofit Community Urges Congressional Leaders to Address Nonprofit Assistance in Next COVID-19 Legislation
On April 8, the charitable nonprofit community urged Congress to include four clarifications and provisions in the next stimulus bill to address the ongoing economic impact of COVID-19. The letter calls on Congress to further recognize the significant role that charitable nonprofits play as the third largest employer in our nation’s economy and as valued problem solvers.
April 6, 2020
Congressional Arthritis Caucus and Congressional Lupus Caucus Lead Letter to Coronavirus Task Force on Hydroxychloroquine
On April 6, two congressional caucuses, the Arthritis Caucus and Lupus Caucus, sent a letter to Vice President Pence and the White House Coronavirus Task Force on hydroxychloroquine access issues for people with arthritis and lupus during the COVID-19 pandemic. The letter emphasized the need to balance the needs of these patients with the priority of finding treatments for COVID-19.
April 6, 2020
Arthritis Foundation Supports Save Organizations that Serve (SOS) America Act
On April 6, the Arthritis Foundation sent a letter to Representatives Seth Moulton (D-MA) and Brian Fitzpatrick (R-PA) in support of their bipartisan legislation, the Save Organizations that Serve America Act (H.R. 6408), which extends the charitable deduction to all taxpayers regardless of whether a taxpayer itemizes deductions in order to increase charitable giving. The bill would also provide $60 billion of emergency funding for nonprofits.
April 6, 2020
Arthritis Foundation Supports the Coronavirus Relief for Seniors and People with Disabilities Act
On April 6, the Arthritis Foundation sent a letter to Senator Bob Casey (D-PA) in support of S. 3544, the Coronavirus Relief for Seniors and People with Disabilities Act. The legislation would help to address the health, well-being, and economic needs of people with disabilities, older adults, and their caregivers during the pandemic.
April 6, 2020
Arthritis Foundation Supports Legacy IRA Act to Incentivize Charitable Giving
On April 6, the Arthritis Foundation sent a letter to Senators Kevin Cramer (R-ND) and Debbie Stabenow (D-MI) and Representatives Don Beyer (D-VA) and Mike Kelly (R-PA) in support of their bipartisan Legacy Individual Retirement Account (IRA) Act (S. 1257 / H.R. 3832), which expands upon the existing IRA charitable rollover.
On April 3, patient, consumer, and provider organizations sent a letter to the White House Coronavirus Task Force to urge the federal government to significantly improve the manufacturing and distribution of ventilators and personal protective equipment (PPE) such as masks to ensure the safety of the health care workforce and patients.
April 1, 2020
Patient and Consumer Organizations Issue Statement Regarding Special Enrollment Period during COVID-19 Pandemic
28 patient and consumer groups representing millions of people nationwide with pre-existing health conditions issued a statement regarding the administration’s decision not to initiate a special enrollment period so that individuals without health insurance can obtain coverage on healthcare.gov. The statement encourages the administration to reconsider this decision moving forward.
Third Quarter
September 29, 2020
Arthritis Foundation Joins the All Copays Count Coalition in Letter to Congress in Support of H.R. 7647, Preserving Patient Saving on Drug Costs Act
The Arthritis Foundation joined the All Copays Count Coalition in sending a letter to Congress in support of H.R. 7647, Preserving Patient Saving on Drug Costs Act. This bill would temporarily delay implementation of the copay accumulator adjustment program provision of the Department of Health and human Services’ 2021 Notice of Benefit Payment Parameter (NBPP).
September 18, 2020
Arthritis Foundation Comments on Georgia’s Medicaid Waiver Proposal
The Arthritis Foundation joined 22 patient organizations in submitting comments to the federal Department of Health and Human Services and the Department of Treasury on the state of Georgia’s 1115 Medicaid waiver and 1332 state innovation waiver. While the organizations were in support of the proposal to create a reinsurance program, the organizations strongly urged the Departments to reject the Georgia Access Model portion of this 1332 waiver application. Reinsurance programs help insurance companies cover the claims of very high-cost enrollees, which in turn keeps premiums affordable for other individuals buying insurance on the individual market. Georgia’s application proposes to prohibit Georgians from choosing to enroll in coverage through the neutral Healthcare.gov platform and instead would require that people enroll directly through insurers or brokers. This policy will make it harder for patients to enroll in comprehensive, affordable healthcare coverage and our organizations oppose this change. Read the letter here.
September 11, 2020
Arthritis Foundation Joins Patient Groups in Letter to CMS Administrator Verma with Telehealth Principles
The Arthritis Foundation joined 34 other patient organization in sending a telehealth principles to Center for Medicare and Medicaid Services Administrator Seema Verma. The organizations hope that Congress, the Administration, and state elected officials will use these principles to ensure that the needs of patients are integrated into future telehealth legislation and regulations.
September 3, 2020
Arthritis Foundation Joins Patient and Provider Groups in Letter to Vice President Mike Pence Regarding Change to COVID-19 Testing Guidelines
The Arthritis Foundation joined many patient and provider organization to express our serious concerns with the recent change to testing guidelines from the Centers for Disease Control and Prevention (CDC), which diminishes the importance of testing asymptomatic individuals who were exposed to COVID-19. The letter, addressed to Vice President Mike Pence, head of the White House Coronavirus Task Force, asked the Department of Health and Humans Services (HHS) to reverse the revision.
August 31, 2020
Arthritis Foundation Joins Patient Groups in Comments on Arizona Governor Ducey’s Crisis Standard of Care Plan
The Arthritis Foundation joined five other patient groups with comments asking Arizona Governor Doug Ducey to modify revise the Arizona Crisis Standards of Care Plan (CSC) (3rd ed. 2020) and subsequent COVID-19 Addendum to protect patients. Specifically, the patient groups asked the Governor to revise current guidelines to ensure that all patients are evaluated on a case-by-case basis and that decisions about who receives treatment are based on current clinical presentation – regardless of underlying health condition or disability.
August 25, 2020
Arthritis Foundation Partners with Patient Organizations on Mail-Order Prescriptions and the USPS
The Arthritis Foundation partnered with 19 other patient organizations in a letter to Postmaster General Louis DeJoy regarding package delays. Chronic disease patients rely on mail to receive their life-sustaining prescriptions. In 2019, USPS shipped 1.2 billion prescriptions, a number that increased by 21% in March. The letter was featured in a Bloomberg article, which included a response from USPS.
Have you experienced a delay in accessing your medications this year? Share your experience with us in our Arthritis Story Bank today.
August 25, 2020
Arthritis Foundation Joins Patient and Provider Groups in a Letter to Congress in Support of Increased Funding for Pediatric Workforce
The Arthritis Foundation joined 54 other patient and provider organizations in a letter to Congress in support of pediatric medical and mental health workforce amid the COVID-19 pandemic. Specifically, the organizations urged Congress to include $50 million in funding for the Pediatric Subspecialty Loan Repayment Program (PSLRP) in the Senate Fiscal Year (FY) 2021 Labor, Health and Human Services (HHS), Education and Related Agencies appropriations bill and prioritize the inclusion of this funding in a final omnibus spending bill.
August 24, 2020
Arthritis Foundation Joins with Other Patient Groups in Asking Texas Governor Abbott to Adopt Crisis Standards of Care Guidelines
The Arthritis Foundation joined with six patient groups to ask Governor Greg Abbott to adopt crisis standard of care guidelines that clearly direct health care providers across the state to refrain from resource allocation practices that discriminate against people with pre-existing conditions and disabilities in the provision of treatment during the COVID-19 pandemic.
August 24, 2020
Arthritis Foundation Joins Patient Groups in Asking Florida Governor DeSantis to Adopt Crisis Standards of Care Guidelines
The Arthritis Foundation joined with five patient groups to ask Governor Ron DeSantis to act to adopt crisis standards of care guidelines that clearly direct health care providers across the state to refrain from discriminating against people with pre-existing conditions and disabilities in the provision of treatment during the COVID-19 pandemic.
August 23, 2020
Arthritis Foundation Submits Comments to FDA Regarding the Reauthorization of the Prescription Drug User Fee Act
The Arthritis Foundation submitted comments to Food and Drug Administration (FDA) Commissioner Stephen Hanh, MD reading reauthorization of the Prescription Drug User Fee Act (PDUFA). The Arthritis Foundation voiced their desire to collaborate with the FDA through development and implementation of PDUFA VII to improve patient representation throughout the drug development, approval, and post-market processes.
August 14, 2020
Arthritis Foundation Comments on Departments of Treasury, Labor, and Health and Human Services “Grandfathered Group Coverage” Proposed Rule
The Arthritis Foundation joined 17 other patient organizations in commenting on the Departments of Treasury, Labor, and Health and Human Services “grandfathered group coverage” proposed rule. The organizations opposed the rule as it runs counter to the plain language and intent of the Affordable Care (ACA). Further, the organizations disagreed with the proposal to award grandfathered group coverage new discretion to increase cost sharing for their enrollees while avoiding the application of the ACA’s core consumer protections.
August 7, 2020
Arthritis Foundation Comments on ICER/OHE White Paper “’Fair Drug Coverage: Criteria for Appropriate Cost-Sharing and Prior Authorization Protocols for Pharmaceutical Coverage”
Arthritis Foundation submitted comments on ICER/OHE White Paper “’Fair Drug Coverage: Criteria for Appropriate Cost-Sharing and Prior Authorization Protocols for Pharmaceutical Coverage. The Arthritis Foundation urges ICER to work with these stakeholders so we can collectively implement health care policies that will improve care for patients while lowering health system costs.
July 20, 2020
Arthritis Foundation Comments to CMS Regarding Medicaid Rulemaking
Document Link
The Arthritis Foundation submitted comments to Centers for Medicare & Medicaid Services Administrator Seema Verma relating to the proposed rule Establishing Minimum Standards in Medicaid State Drug Utilization Review and Supporting Value Based Purchasing for Drugs Covered in Medicaid, Revising Medicaid Drug Rebate, and Third Party Liability Requirements. The Arthritis Foundation expressed an eagerness to work with the Administration on increasing innovation and value-based care, which will ultimately benefit patients and lower overall healthcare costs.
July 20, 2020
All Copays Count Steering Committee Submits Comments on Medicaid Best Price Rule
The Arthritis Foundation joined steering committee members of the All Copays Count Coalition in providing comments to the Centers for Medicaid & Medicaid Services regarding their proposed rule relating to the determination of best price in connection with manufacturer copay assistance.
Fourth Quarter
Arthritis Foundation Submits 3 Separate Comment Letters to CMS and HHS on the NBPP
First, the Arthritis Foundation submitted comments on the Notice of Benefit & Payment Parameters (NBPP) for 2022 to the Centers for Medicare & Medicaid Services (CMS) Administrator Seema Verma. The letter covered a number of topic areas including exchange direct enrollment, 1332 waivers, premium adjustment and maximum out-of-pocket costs, accumulator adjustment programs, and navigator programs.
Second, the All Copays Count Coalition submitted comments on the NBPP for 2022 to the CMS Administrator Seema Verma. The comments focused on is the absence of any language or provision addressing limits imposed by payers or PBMs on manufacturers’ copay assistance for high-cost pharmaceuticals. The coalition urged CMS to reflect this sentiment in the 2022 NBPP and ensure that copay assistance counts towards a patients’ cost-sharing.
Third, the Arthritis Foundation joined 23 other patient organizations in comments on the NBPP for 2022 to the CMS & the Department of Health & Human Services. The letter covered a number of topic areas including exchange direct enrollment, 1332 waivers, elimination of exchanges, premium adjustment and maximum out-of-pocket costs, and navigator programs.
December 22, 2020
Arthritis Foundation Joins Patient and Provider Groups on CMS’ Most Favored Nation Rule
The Arthritis Foundation joined many patient and provider organization in a letter to Congress regarding the Centers for Medicare & Medication Innovation Services (CMMI) at the Centers for Medicare & Medicaid Services (CMS) moving forward with the Most Favored Nation (MFN) Model for Medicare Part B Drugs. Medicare patients with conditions, such as rheumatoid arthritis and other autoimmune disorders, may face massive hurdles in accessing critical therapies as a result of MFN.
NOTE: Since this letter, an injunction has been delayed the implementation of this rule
December 18, 2020
Arthritis Foundation Comments to the FDA Regarding the Reauthorization of the Biosimilar User Fee Act
The Arthritis Foundation submitted comments to the Commissioner of the Food and Drug Administration (FDA) regarding the Reauthorization of the Biosimilar User Fee Act (BsUFA). The comments build upon testimony that was given at a November 19, 2020 public meeting, focusing on the need for best practices in patient and provider education and communication.
December 2020
Arthritis Foundation Submits Letters to Congress in Support of Surprise Medical Billing Legislation
First, the Arthritis Foundation submitted a letter applauding Congressional leadership in advancing crucial legislation on surprise medical billing and urges you to swiftly pass this legislation. The Arthritis Foundation urged patient-centered reforms across the entire health care system to balance the need for patient access to therapies and lower out-of-pocket costs while instilling an innovative culture.
Second, the Arthritis Foundation joined 30 other patient organizations in applauding Congressional committee leaders for reaching a bicameral and bipartisan agreement to address surprise medical billing and urge Congress to quickly enact it. The No Surprises Act represents a significant step toward the goal of ending surprise medical billing and is an improvement for patients over the status quo.
December 11, 2020
Arthritis Foundation Joins Patient Groups in Requesting Montana Governor Steve Bullock Adopt Crisis of Care Standards
The Arthritis Foundation joined 7 other patient organizations in a letter to request the state of Montana adopt a policy that clearly directs health care providers across the state to refrain from discriminating against people with pre-existing chronic conditions and disabilities in the provision of treatment during the COVID-19 emergency.
December 11, 2020
Arthritis Foundation Joins Patient Groups in Comments to Oklahoma Governor Kevin Stitt Regarding the State’s Crisis of Care Standards
The Arthritis Foundation joined 6 other patient organizations in comment on the Oklahoma’s draft document entitled “Hospital Crisis Standards of Care” and to request the state of Oklahoma adopt a policy that clearly directs health care providers across the state to refrain from discriminating against people with pre-existing chronic conditions and disabilities in the provision of treatment during the COVID-19 emergency.
December 11, 2020
Arthritis Foundation Joins Patient Groups in Comments to New Mexico Governor Michelle Lujan Grisham Regarding the State’s Crisis of Care Standards
The Arthritis Foundation joined 6 other patient organizations in comments on the New Mexico’s draft document entitled “New Mexico Triage Protocol for the Allocation of Scarce Resources Under COVID-19 Crisis Standards of Care”1 and to request the state of New Mexico adopt a policy that clearly directs health care providers across the state to refrain from discriminating against people with pre-existing chronic conditions and disabilities in the provision of treatment during the COVID-19 emergency.
December 4, 2020
Arthritis Foundation Joins Patient and Provider Groups in Letter to Congress in Support of the Safe Step Act
The Arthritis Foundation joined 59 patient and provider organization in a letter urging Congress to pass legislation to institute sensible guidelines for using step therapy protocols in federally-governed ERISA plans.
December 4, 2020
Arthritis Foundation Joins Patient Groups in Letter to HHS Rulemaking
The Arthritis Foundation joined 23 patient organization in a letter to Health & Human Services Secretary Alex Azar regarding the proposed rule titled “Securing Updated and Necessary Statutory Evaluations Timely.” The organizations called for the immediately withdraw of the proposed rule due to the impact that it would have on millions of Americans.
December 4, 2020
Arthritis Foundation Joins Patient Groups in Calling for Congress to Permanently End Surprise Medical Billing
The Arthritis Foundation joined 27 patient organizations in a letter to Congress in support of efforts to immediately enact legislation to permanently end all forms of surprise medical billing. The organizations stressed that now more than ever, amid recent media reports that patients are receiving surprise medical bills stemming from COVID treatment, it is urgent that Congress act now to enact bipartisan,
bicameral legislation to protect patients from surprise medical bills.
December 3, 2020
PPC Comment Letter on HHS SUNSET Proposed Rule
The Arthritis Foundation signed on to a coalition comment letter on a proposed rule from HHS entitled, “Securing Updated and Necessary Statutory Evaluations Timely” (SUNSET rule). Under the proposed rule, almost all regulations that HHS does not review within certain periods of time will automatically expire, jeopardizing many healthcare coverage programs important to our coalition.
December 3, 2020
Letter to Congressional Leadership on Key Surprise Medical Billing Legislation
The Arthritis Foundation signed on to a coalition letter to Congressional leadership related to potential surprise medical billing inclusion in an end-of-year legislative package. The letter urges Congress to enact bipartisan, bicameral legislation to protect patients from surprise medical bills, particularly considering the COVID-19 pandemic. We have previously supported such legislative action in past letters, including comprehensive protections for patients and consumers.
November 23, 2020
Arthritis Foundation Joins Patient Groups in Letter to President-Elect Biden with COVID-19 recommendations
The Arthritis Foundation joined 31 other patient organizations in sending a letter to President-Elect Joseph Biden for recommendations that his administration and congressional colleagues could take on COVID-19 when he takes office. The recommendations would help assure that patients will be protected during the pandemic and that the health care system would remain viable and available to them after the crisis is over.
November 23, 2020
Arthritis Foundation Joins Other Patient and Provider Groups in Sending a Letter of Support to House Legislative Leadership for Massachusetts Step Therapy Reform
The Arthritis Foundation joined 31 other patient and provider organizations in sending a letter to Massachusetts legislative leadership in support of step therapy reform. This important reform has already passed in MA Senate in 2020 and these organizations are asking the MA House of Representatives to pass the bill! Read the letter here.
November 12, 2020
Arthritis Foundation Joins Patient Groups in Comments on Surprise Billing Rule Making in Georgia
The Arthritis Foundation joined 11 patient advocacy organizations in providing comments to the Georgia Administrative Procedure Division relating to rule making on surprise billing. These rules come as a result of the passage of legislation during the 2020 state legislative session.
November 9, 2020
Arthritis Foundation Joins 33 Patient Organizations in 100 Days Agenda Blueprint
The Arthritis Foundation recently joined 33 patient organizations to ensure patients are at the center of the 100 Days Agenda. The blueprint urges the policy agenda to:
- Reduce administrative barriers to care
- Stand up for patients in the courts
- Advance a robust, pro-patient legislative agenda
November 6, 2020
Arthritis Foundation Sends Letters of Support Regarding Ohio Patient Protection Bills
The Arthritis Foundation sent letters of support to the Ohio House Health Committee relating to HB 469, accumulator adjustment programs, and HB 418, mid-year formulary changes.
November 6, 2020
Arthritis Foundation Submits a Letter of Support for Accumulator Adjustment Program Legislation in Michigan
The Arthritis Foundation sent a letter of support for H.B. 5944 to members of the Michigan Ways & Means Committee. This important bill will ensure that insurers and pharmacy benefit managers can not restrict assistance from counting towards a patient’s cost sharing requirements, such as a patient’s deductible.
November 2, 2020
Arthritis Foundation Submits Letter to Ensure Continued Allowance of Patient Assistance in Massachusetts
The Arthritis Foundation sent a letter to Massachusetts legislators advocating to ensure that patients have access to manufacturer copayment assistance for their medications.
October 26, 2020
Arthritis Foundation Joins Other Patient Groups in Commenting on Utilization Management Rule Making in Washington
The Arthritis Foundation joined 18 patient and provider organizations in providing comments to the Washington Office of the Insurance Commissioner relating to rule making on utilization management protocols. These rules build upon the passage of ESHB 1879, which was supported by the Arthritis Foundation. The proposed rule delivers a strong and balanced approach.
October 23, 2020
Arthritis Foundation Joins Patient Groups in Comments on Rule Making for South Dakota’s Short Term Limited Duration Plans
The Arthritis Foundation joined 19 organizations in providing comments to the South Dakota Division of Insurance (DOI) relating to rule making on the passage of S.B. 181. Specifically, the groups oppose the DOI’s proposal to extend the length of these plans to twelve (12) months and instead urge DOI to use its authority to limit the duration of STMMPs to three months. Short-term major medical plans (STMMPs) were originally meant to be a temporary stop-gap option for people who had lost their regular coverage. However, they have become more available since federal rules were finalized in 2018 to extend the duration for which they can be offered.
October 19, 2020
Arthritis Foundation Sends Letter of Support for New Jersey Step Therapy Bill
The Arthritis Foundation submitted a letter of support for A. 4815 in New Jersey. This important bill will enact guardrails to step therapy. Specifically, this bill ensures that step therapy protocols are based on evidence-based clinical review criteria, provide for standard exceptions to step therapy, and ensures standard timeframes for responses to exception requests.
October 19, 2020
COVID-19 Vaccine Equitable Distribution Letter
The Arthritis Foundation joined the Adult Vaccine Access Coalition and partners in signing a letter on vaccine equitable distribution to Secretary Azar, ADM Giroir, Director Redfield, Commissioner Hahn, and Chief Advisor Slaoui. The letter provides recommendations to ensure equitable allocation, distribution, access, and utilization of forthcoming COVID-19 vaccines.
Specifically, the letter recommends the following actions:
- Provide full transparency at every stage of the process to foster public confidence and maximize vaccine acceptance and use, especially among communities that have been the hardest hit by, and are most susceptible to, COVID-19.
- Ensure information, resources, and vaccines reach and are utilized by at-risk and underrepresented populations.
- Support essential immunization infrastructure and the community-based immunization providers.
October 16, 2020
Arthritis Foundation Joins Patient Groups in Press Release Reacting to Georgia’s Medicaid Waiver
The Arthritis Foundation joined 17 other patient organizations in a press release reacting to the approval of Georgia’s Medicaid waiver. The organizations had previously urged the Administration to reject the waiver proposal, which jeopardizes healthcare coverage for patients.
October 7, 2020
Patient and Provider Organizations Send Letter to UnitedHealthcare Regarding New Accumulator Policy
Document Link
The Arthritis Foundation joined 11 patient and provider organizations in a letter to UnitedHealthcare (UHC) regarding their new proposed copay accumulator initiative and the impact it would have on patients’ ability to access the critical treatments they rely on to control their disease. Specifically, with this new policy, UHC will ask physicians to provide information regarding copay assistance funds which patients receive for their treatments. UHC would then use this information to enforce a copay accumulator, ensuring that no copay assistance funds are applied toward patients’ deductibles or out of pocket maximum payments.
October 7, 2020
Arthritis Foundation joins AHA, AMA, and MGMA in Prior Authorization Comments
Document Link
The Arthritis Foundation joined the American Hospital Association (AHA), the American Medical Association (AMA), and the Medical Group Management Association (MGMA) in comments relating to prior authorization to the National Committee on Vital and Health Statistics (NCVHS). The comments were in follow up to testimony given to the NCVHS on prior authorization operating rules proposed by the Council for Affordable Quality Health Care, Committee on Operating Rules for Information Exchange (CORE).
October 5, 2020
Arthritis Foundation Sends Letter to CMS Concerning Proposed CY 2021 Physician Fee Schedule
Document Link
The Arthritis Foundation sent comments on the proposed Calendar Year 2021 Proposed Physician Fee Schedule to Center for Medicare and Medicaid Services Administrator Seema Verma. The comments focused on coverage for certain telehealth services; and the proposed cuts to physical therapy and other services as a result of budget neutrality requirements.
October 3, 2020
Arthritis Foundation Leads Letter to States on Safer Voting
The Arthritis Foundation led a letter with the American Diabetes Association, with 24 other patient groups signed-on, to the National Governors Association with recommendations to states on ensuring chronic disease patients can more safely vote (whether by mail or in-person) this election and in future elections. In addition to the NGA, the letter was also sent to the individuals Governors, the National Association of Secretaries of State, and the National Council of State Legislatures.
2019
First Quarter
March 2019
Arthritis Foundation Leads the Way in Building Support for Federal Investments in Arthritis Research and Programs
Throughout the month of March, the Arthritis Foundation sent sign-on letters to the Appropriations Committees on the CDC Arthritis Program, arthritis research at the Department of Defense, and the National Institute of Musculoskeletal and Skin Diseases, with more than a dozen organizations joining the way.
February 19, 2019
Arthritis Foundation Comments on Annual Notice of Benefit and Payment Parameters
On February 19, the Arthritis Foundation submitted comments to the Department of Health and Human Services (HHS) on the proposed Notice of Benefit and Payment Parameters for 2019. The proposed regulation affects the individual health insurance market and the health care exchanges. Our comments focused on proposed increases in premiums and out-of-pocket costs as well as impacts on access to needed medications for people with arthritis. Read the letter here.
February 7, 2019
Arthritis Foundation Submits Comments on Medicaid Waiver from Tennessee
The Arthritis Foundation submitted comments to the federal Department of Health and Human Services on the state of Tennessee’s 1115 Medicaid waiver. The waiver seeks to add a work and community engagement component to the state’s Medicaid program. The proposal would require enrollees to report at least 80 hours of work per month, or that they meet certain exemptions under the proposal. A major consequence is that administrative burdens would increase for enrollees, and implementing this proposal would be expensive for the state. Read the letter here.
February 1, 2019
Arthritis Foundation Joins Over 70 Organizations Urging Reauthorization of the Pediatric Subspecialty Loan Repayment Program
On February 1, several dozen organizations dedicated to improving the health and wellbeing of children and adolescents wrote leaders in Congress to reauthorize a federal loan repayment program that supports pediatric subspecialists. The program provides loan repayment for physicians who specialize in pediatrics – such as pediatric rheumatology – if they commit to working in an underserved area of the country for a period of time. Read the letter here.
January 29, 2019
Arthritis Foundation and American College of Rheumatology to Hold Briefing on Arthritis in the Military
On February 13, the Arthritis Foundation and American College of Rheumatology will hold a briefing on Capitol Hill to highlight the epidemic of arthritis among U.S. military service members and veterans. Read more here.
January 24, 2019
Arthritis Foundation Comments on Medicare Advantage and Part D Proposed Rule
On January 24, the Arthritis Foundation submitted comments to the Centers for Medicare and Medicaid Services on a proposed regulation affecting Medicare Advantage and Medicare Part D, the prescription drug program. The Foundation’s comments highlighted concerns with last fall’s guidance that permits step therapy in Medicare Advantage plans. We also applauded the administration’s action to address pharmacy gag clauses, which prevent pharmacists from telling patients when it might be cheaper to pay for medication with cash rather than through insurance. Read the comments here.
January 18, 2019
Arthritis Foundation Comments on Medicaid Waiver from Oklahoma
The Arthritis Foundation submitted comments to the federal Department of Health and Human Services on the state of Oklahoma’s 1115 Medicaid waiver. The waiver seeks to add a work requirement to the state’s Medicaid program. A major consequence of the proposal is that it will increase the administrative burden on all patients, including those with chronic diseases like arthritis who depend on Medicaid for health care. Read the letter here.
January 4, 2019
Arthritis Foundation Comments on Medicaid Waiver from Virginia
The Arthritis Foundation submitted comments to the federal Department of Health and Human Services on the state of Virginia’s 1115 Medicaid wavier. The waiver seeks to add a work and community engagement component to the state’s Medicaid program. Arthritis is the leading cause of work-related disability in the United States and these types of proposals can create barriers to accessing or maintaining health care coverage. Read the letter here.
January 2, 2019
Arthritis Foundation Comments on Medicare IPI Model
The Arthritis Foundation submitted comments to the federal Department of Health and Human Services on a proposal that would change how physician-administered drugs are paid for under the Medicare program. As described in the proposal, we believe the international pricing index (IPI) model’s projected benefits are outweighed by potential negative impacts on patient access. Read the letter here.
Second Quarter
April 8, 2019
Patient and Provider Organizations Urge Step Therapy Safeguards for Beneficiaries Enrolled in Medicare Advantage
On April 8, the Arthritis Foundation joined over two dozen patient and provider organizations to urge the federal Department of Health and Human Services to implemented patient guardrails for 2019 enrollees in Medicare Advantage, the private insurance alternative to traditional Medicare. Last fall, the administration released guidance to Medicare Advantage plans that granted them permission to use step therapy. Read the letter here.
April 8, 2019
Arthritis Foundation Joins 32 Organizations in Support of Legislation to Rollback Short-Term Health Plans
On April 8, nearly three dozen organizations submitted a statement for the record to the House Committee on Education and Labor in support of legislation that would invalidate a federal regulation that recently expanded short-term health plans. Short-term health plans are not required to comply with protections for people with pre-existing conditions like arthritis. Read the statement here.
April 5, 2019
Arthritis Foundation Comments on Proposal to Eliminate Rebates from Medicare Part D and Medicaid
On April 5, the Arthritis Foundation submitted comments on a federal proposal that would replace the existing drug rebate system with discounts to consumers at the pharmacy counter. Today, rebates that pharmaceutical companies offer health plans are usually not passed on to patients. The Arthritis Foundation supported the broader goals of the proposal but expressed concern about how changes to the manufacturer rebate system would be implemented. Read the letter here.
April 1, 2019
Arthritis Foundation Continues to Engage with the Administration on Pain Management Issues
On April 1, the Arthritis Foundation submitted comments to the Department of Health and Human Services on their Draft Pain Management Best Practices Guidelines, highlighting the unique perspective of people with arthritis and the need for strong patient education and access to resources on pain management. Click here to read to comments.
April 2019
Surprise Billing Issue Brief
Surprise billing occurs when a healthcare provider bills a patient for the difference (or balance) between the provider’s charge for the service and the health plan’s payment for that service. Patients often receive these types of bills when they receive care from an out-of-network provider. Read more about the issue and potential solutions here.
2018
First Quarter
March 6, 2018
Arthritis Foundation Signs Letter Expressing Concern with Proposals to Expand Association Health Plans
The Arthritis Foundation, along with 117 other patient and community organizations, signed onto an I Am Essential coalition letter to the federal Department of Labor expressing strong concerns with a proposal that would expand a type of insurance plan known as an association health plan. These types of plans would not be required to comply with important patient protections under current law such as the ten essential health benefits, including prescription medications. In addition, the plans would not be required to cap a patient's out-of-pocket maximums for deductibles, co-payments, and co-insurance. Read the letter here.
February 26, 2018
Arthritis Foundation Urges Increased Funding of the CDC Arthritis Program for the Remainder of Fiscal Year 2018
On February 26, the Arthritis Foundation sent two letters to leaders of the health committees in Congress that oversee funding for the Centers for Disease Control and Prevention (CDC) Arthritis Program. In the letters, we urged increased investment in the CDC's Arthritis Program for the current fiscal year. The CDC's Arthritis Program is the only federal program dedicated solely to arthritis, and carries out important public health research and data collection. Thanks to the bipartisan budget agreement earlier this month, additional funding is now available for these types of programs. Read the House letter here, and the Senate letter here.
February 22, 2018
Arthritis Foundation Comments on Mississippi's Workforce Training Medicaid Waiver
On February 22, the Arthritis Foundation submitted comments to the federal Department of Health and Human Services (HHS) regarding Mississippi's proposal to institute work requirements for Medicaid patients. A major consequence of these requirements would likely be an increase in the paperwork burden for all Medicaid patients, making it more challenging for people to maintain health care coverage. Read the letter here.
February 22, 2018
Arthritis Foundation Comments on Wisconsin's Request to Extend Medicaid Waiver
On February 22, the Arthritis Foundation submitted comments to federal Department of Health and Human Services (HHS) expressing concern about the cost-sharing requirements proposed in the waiver application. In addition, the proposal would impose work requirements and place limits on how long Medicaid patients can receive benefits under the program. Arthritis is the leading cause of work-related disability in the United States and these types of proposals can create barriers to accessing health care coverage. Read the letter here.
February 21, 2018
Arthritis Foundation Applauds FDA's Biosimilar Educational Materials
On February 21, the Arthritis Foundation and National Psoriasis Foundation sent a letter to the Food and Drug Administration (FDA) expressing appreciation for efforts to advance innovative therapies and make biosimilar eduation materials available to health care providers. These educational tools can help prescribers learn about biosimilars and, subsequently, increase opportunities for patients to access new treatments. The letter also acknowledges our support for the FDA's scientific standards in evaluting the safety and efficacy of biosimilars. Read the letter here.
February 20, 2018
Proposed Short-Term Insurance Plans Could Leave Patients with Fewer Protections, Inadequate Coverage
On February 20, the Arthritis Foundation joined 16 patient and consumer groups to issue a statement on a proposed regulation released today by the federal Departments of Labor, Treasury, and Health and Human Services, which would expand the use of "short-term limited duration" insurance plans. The Arthritis Foundation is concerned these types of plans could exclude coverage for certain health care services, and allow insurers to charge individuals with a pre-existing condition higher rates. Read the statement here.
February 12, 2018
CDC Arthritis Coalition Statement on the President's Fiscal Year 2019 Budget Request
On February 12, the president released the administration’s official budget request for fiscal year 2019. The budget would make cuts to the Chronic Disease Division at the Centers for Disease Control and Prevention (CDC). The division houses the CDC Arthritis Program, the only federal program dedicated solely to arthritis. Read our coalition statement here.
February 9, 2018
Arthritis Foundation Praises Budget Deal, Permanent Repeal of Therapy Caps
Early Friday morning, Congress passed a significant bipartisan budget agreement that would fund many health care priorities important to the arthritis community, raise the budget caps for discretionary spending, and bring Congress closer to closing out work on the fiscal year 2018 appropriations process. Read our statement here. Do you want to learn more about the bipartisan budget agreement and what it means for the arthritis community? Click here to read our FAQ.
February 5, 2018
Arthritis Foundation Comments on Arizona's Proposed Medicaid Waiver
On February 5, the Arthritis Foundation joined a dozen patient organizations to submit comments to the federal Department of Health and Human Services (HHS) expressing concern about the cost containment proposals in the state of Arizona's Medicaid waiver application. The waiver would impose work requirements and place limits on how long Medicaid patients can receive benefits under the program. Our letter follows similar comments submitted to HHS about waiver applications from the states of Kansas and New Mexico. Read the letter here.
January 30, 2018
Arthritis Foundation Comments on Proposed Medicaid Waiver from New Mexico
On January 30, the Arthritis Foundation joined eight patient organizations to submit comments to the federal Department of Health and Human Services expressing concern about some of the policy proposals in the state of New Mexico's Medicaid waiver application. While the Arthritis Foundation shares the goals outlined in the application - such as proposals that would enhance the health of patients with arthritis through coordinated care - new cost sharing and eligibility requirements could pose significant access barriers for patients on Medicaid. Read the letter here.
January 26, 2018
Arthritis Foundation Comments on Proposed Medicaid Waiver from Kansas
On January 26, the Arthritis Foundation joined several other patient organizations to oppose aspects of a proposed Medicaid waiver from the state of Kansas by sending a letter to the federal Department of Health and Human Services. The Kansas waiver would impose work requirements and place time limits on how long Medicaid patients can receive benefits under the program. Arthritis is the leading cause of work-related disability in the United States and these types of proposals can create barriers to accessing or maintaining health care coverage. Read the letter here.
January 25, 2018
Arthritis Foundation Comments on Request for Information to Barriers and Competition
On January 25, the Arthritis Foundation submitted comments in response to a request for information from the Department of Health and Human Services regarding choice and competition in Medicare, Medicaid, and the marketplaces. The comments highlighted concerns about the direction of the health care regulations, and the need to preserve important patient protections under current law, and the potential for erosion of network adequacy standards. Read the letter here.
January 19, 2018
Arthritis Foundation Joins 31 Organizations to Urge CMS to Suspend Application of Therapy Cap Policy
On January 19, the Arthritis Foundation joined dozens of organizations calling for the Centers for Medicare and Medicaid Services (CMS) to suspend the application of the Medicare therapy cap policy. Beginning on January 1, 2018, there is a limit on the amount of outpatient rehabilitation services that the Medicare program will cover. Physical and occupational therapy plays an important role in the treatment of arthritis by improving mobility and restoring the use of affected joints, increasing strength to support the joints, and maintaining fitness and the ability to perform daily activities. Read the letter here.
January 17, 2018
Arthritis Foundation Applauds Consensus Statement on Improving Prior Authorization Process
On January 17, six organizations representing health care providers and health plans released a consensus statement to find opportunities to improve prior authorization programs. The Arthritis Foundation applauds the consensus statement, which follows a separate publication of 21 prior authorization and utilization management reform principles in 2017. The Arthritis Foundation was the only patient organization to participate in the development of these principles last year. The principles strongly urge health plans and benefit managers to apply the principles to utilization management programs for pharmacy and medical benefits. Read the principles here.
January 16, 2018
Arthritis Foundation Signs Coalition Letter Addressing Medicare Advantage and Part D Proposed Rule
On January 16, the Arthritis Foundation joined nearly three dozen organizations from MAPRx, a national coalition of beneficiary, caregiver and health care professional groups, to submit public comments on a proposed rule affecting Medicare Advantage and Medicare Part D. The letter emphasized the need to balance prescription drug plan flexibility with protections for Medicare enrollees. Read the letter here.
Second Quarter
June 19, 2018
Arthritis Foundation Joins 25 Organizations Expressing Disappointment Over Association Health Plan Regulation
On June 19, the Arthritis Foundation and over two dozen patient and consumer groups issued a statement on a final regulation released by the federal Department of Labor that would expand the use of association health plans. Under the rule, these types of plans would not need to meet all of the consumer protections under current law, including essential health benefits such as prescription drug coverage. Read our statement here.
June 18, 2018
Arthritis Foundation Supports Legislation in House of Representatives That Bans Pharmacist Gag Clauses
On June 18, the Arthritis Foundation sent a letter of support to the lead sponsors of legislation that would allow pharmacists to inform patients about alternative options to lower out-of-pocket costs. Today, so-called gag clauses prohibit a pharmacist from informing a patient about whether their medication could be cheaper if they paid cash versus using their health insurance. The bill is similar to legislation introduced in the U.S. Senate. Read the letter here.
April 20, 2018
Arthritis Foundation Submits Comments on Short-Term Plan Proposed Regulation
On April 20, the Arthritis Foundation submitted public comments to the federal Departments of Health and Human Services, Labor, and Treasury expressing concern about the administration’s proposal to expand the duration of short-term health plans. These types of insurance plans are not required to offer coverage for essential health benefits, such as prescription drugs, and can do not include protections for people with pre-existing conditions. The Foundation’s comments focused on the importance of patient protections under current law and the need to avoid finalizing the regulation as proposed. Read the letter here.
April 16, 2018
Arthritis Foundation Joined by Ten Patient and Provider Groups in Support of Federal Bill Addressing Gag Clauses
On April 16, the Arthritis Foundation sent a letter of support for legislation that would prohibit health plans from using so-called gag clauses, which can be used to prohibit the disclosure of pricing options to patients. Some pharmacists are required to sign “gag orders,” which can prevent a patient from making the cheaper choice of paying out of pocket for medication at the pharmacy counter, rather than paying a higher co-payment if they had used their health insurance. Read the letter here.
Third Quarter
September 26, 2018
Arthritis Foundation Comments on South Dakota’s Medicaid Waiver
On September 26, the Arthritis Foundation submitted comments to the federal Department of Health and Human Services expressing concern about South Dakota’s Medicaid waiver. The waiver would implement work requirements in the state’s Medicaid program, which would increase administrative burden on patients enrolled in the program. Read the letter here.
September 26, 2018
Arthritis Foundation Joins Letter Expressing Concern About Step Therapy Guidance for Medicare Advantage Plans
On September 26, the Arthritis Foundation and over 80 patient and provider organizations sent a letter to the Department of Health and Human Services expressing concern about the recent guidance instituting step therapy in Medicare Advantage plans. The letter urges the administration to accompany the new policy with a set of patient protections. Read the letter here.
September 19, 2018
Arthritis Foundation Sends Letter on Pre-Existing Conditions Legislation
On September 19, the Arthritis Foundation joined with nearly three dozen patient and provider groups in a letter about legislation designed to address concerns with the potential impact of a court case in Texas that could roll back pre-existing conditions protections. While we believe the legislation is well-intended, it does not encompass all of the patient protections under current law. Read the letter here.
September 4, 2018
More Than 25 Patient and Consumer Groups Issue Statement on Pre-Existing Conditions Bill
On September 4, the Arthritis Foundation joined over two dozen patient and consumer groups in a statement expressing both appreciation and concern for legislation introduced in the U.S. Senate, which would prohibit the denial of coverage based on health status, but would not ban pre-existing condition exclusions or prevent insurers from varying premiums based on age, gender, or occupation. This means that people with chronic diseases could still face higher premiums and out-of-pocket costs. Read the statement here.
August 30, 2018
Arthritis Foundation Statement on CMS Guidance Providing for Indication-Based Drug Coverage in Part D
The Arthritis Foundation released a statement in response to the administration’s announcement of new guidance to Medicare Part D prescription drug plans about the use of indications-based formulary design. The type of plan design means that a drug could be placed on a formulary only for the specific indication for which it is most effective. This policy would likely further restrain the already narrow available treatments for inflammatory forms of arthritis. Read our statement here.
August 22, 2018
Arthritis Foundation Expresses Concern about Association Health Plan Provision in Farm Bill
The Arthritis Foundation joined 19 patient and health organizations to urge conferees of the Agriculture and Nutrition Act to omit language from the final conference report that would assist in the establishment of agriculture association health plans (AHPs). This language could impact access to affordable, adequate health insurance coverage for people with arthritis. Although many of our organizations expressed distaste for AHPs earlier in the year, these concerns were disregarded. Read the statement here.
August 16, 2018
Arthritis Foundation Comments on Reopened Kentucky Medicaid Waiver
On August 16, the Arthritis Foundation submitted comments to the Centers for Medicare and Medicaid Services (CMS) on Kentucky’s waiver application, which seeks to include work requirements in Medicaid. CMS is the federal agency responsible for working with states to jointly administer the Medicaid program. Our comments focused on the complexities of treating arthritis on top of the administrative burden associated with a work requirement policy. Read our letter here.
August 8, 2018
Arthritis Foundation Statement on Step Therapy in Medicare Advantage
The administration announced a policy change that would permit Medicare Advantage plans to implement step therapy protocols. We have long been guided by the principle that patients who are stable on a medication should be able to remain on that medication. We're concerned this announcement could have unintended consequences or adverse impacts on patient health. Read our statement.
August 1, 2018
Arthritis Foundation Deeply Troubled by Administration’s Decision to Finalize Short Term Health Plan Regulation
The Arthritis Foundation joined 26 patient and consumer organizations to release a statement expressing significant concerns with a final regulation that expands short-term, limited duration health plans. Over 98 percent of health care stakeholders opposed the proposal last April yet these collective concerns were disregarded. Read the statement here.
July 25, 2018
Arthritis Foundation Applauds Focus on Health Savings Accounts by the House of Representatives
Today, the House of Representatives is scheduled to consider two bills addressing health savings accounts (HSAs). These types of accounts are paired with high deductible health plans (HDHPs). While these arrangements are by no means a comprehensive solution, we have consistently heard from people with arthritis who are increasingly enrolled in these plans and want greater flexibility to feel more confident health care needs are being met. Read our statement.
July 24, 2018
Arthritis Foundation Expresses Concern About New Insurance Practice That Could Increase Patient Out-of-Pocket Costs
Fifty-eight patient, provider, and consumer groups sent letters to every state insurance commissioner to sound the alarm on an emerging insurance practice that affects how a drug manufacturer copay card is applied to a patient’s deductible. The Arthritis Foundation does not take a position on copay cards but has heard from a number of arthritis patients that they have encountered this new insurance practice. Read the statement and a sample letter here.
July 16, 2018
Arthritis Foundation Submits Comments on Administration’s Drug Pricing Blueprint
On July 16, the Arthritis Foundation submitted comments to the federal Department of Health and Human Services in response to a request for information about strategies and opportunities to lower drug prices and reduce patient out-of-pocket costs in the Medicare program. Our letter emphasized that drug pricing and affordability are two issues that deeply impact people with arthritis, and we urged the administration to keep the patient perspective at the center of policy decisions. Read the letter here.
July 11, 2018
Arthritis Foundation Statement on Latest Health Insurance Marketplace Actions Taken by the Administration
Over the last week, the administration took two actions that have the potential to further destabilize the individual health insurance market by deciding to freeze certain payments to insurers that participate on the health insurance exchanges, and by cutting funding for organizations that help patients sign up for coverage. Read our statement on these actions here.
Fourth Quarter
December 17, 2018
Arthritis Foundation Joins 37 Patient Organizations to Speak Out Against Recent Ruling in Texas Affordable Care Act Case
Following Friday’s ruling in the case of Texas vs. United States, which found all of the Affordable Care Act unconstitutional, the Arthritis Foundation joined over three dozen patient groups to issue a statement. Read the statement here.
November 27, 2018
The Arthritis Foundation and the California Rheumatology Alliance have partnered on a one-pager to help with implementation of new laws in California
The organizations hope that this document could be used as a resource for providers and patients to help clarify the recent changes to laws concerning prior authorization and step therapy requests. The document provides answers to frequently asked questions on how these utilization management tools are now used in the state. Resources such as links to the uniform prior authorization form, where to go to file and Independent Medical Review adn where to go to file a comoplaint to the Department of Managed Health Care are sure to make this a one stop shop for providers and patients when handling prior authorization and step therapy request in the states. Read the statement here.
October 24, 2018
Patient and Consumer Organizations Issue Statement on New Guidance that Relaxes Certain Patient Guardrails
On October 24, the Arthritis Foundation joined with the National Health Council and dozens of other organizations to urge withdrawal of new guidance issued by the Centers for Medicare and Medicaid Services (CMS) that would waive certain requirements under the Affordable Care Act that protect people with pre-existing conditions. While the new guidance provides states with additional flexibility, the Arthritis Foundation is concerned the changes will be at the expense of ensuring access to comprehensive health coverage for people with chronic diseases. Read the statement here.
October 9, 2018
Patient and Provider Organizations Urge Reauthorization of Pediatric Subspecialty Loan Repayment
On October 9, the Arthritis Foundation joined dozens of patient and provider organizations, including the American College of Rheumatology and American Academy of Pediatrics, to send a letter to the U.S. Senate urging key policymakers to reauthorize loan repayment for pediatric subspecialists like pediatric rheumatologists. Timely access to pediatric subspecialists is essential. Read the letter here.
October 1, 2018
Arthritis Foundation Urges Stronger Exceptions Process for Step Therapy in Medicare Advantage
On October 1, the Arthritis Foundation and 39 patient and provider organizations sent a letter to the Department of Health and Human Services urging a stronger exceptions process for new step therapy guidance. The guidance permits the use of step therapy for physician-administered drugs under Medicare Part B beginning in January 2019. When the policy was first announced in August, the Arthritis Foundation released a statement expressing disappointment with the guidance. Read the coalition letter here.
2017
First Quarter
March 21, 2017
Arthritis Foundation Supports Medicaid Expansion along with Nearly 30 Other Patient Advocacy Organizations in Sign on Letter to House Leadership
The Arthritis Foundation speaks out against proposals to phase our Medicaid expansion along with nearly 30 other patient advocacy organizations in sign-on letter to House Leadership. The letter emphasizes that Medicaid is critical for patients, that converting the federal financing of Medicaid to a per capita cap system would negatively impact patients, and that failing to expand Medicaid would result in millions of people losing coverage. Moving forward, the Arthritis Foundation hopes to continue dialogue with House Leadership that will help to arrive at solutions that provide all Americans with high-quality, affordable care. Read the letter here!
March 21, 2017
Ann Palmer, President and CEO of the Arthritis Foundation, Addresses Congressional Leadership to Raise Concerns about the American Health Care Act
Ann Palmer addressed Congressional Leadership in a letter that expresses concern about the American Health Care Act (ACHA). The letter outlines several of our patient principles that the Arthritis Foundation is encouraged to see included in the AHCA, along with concerns about other patient protections not considered in the bill. These provisions are critical to ensure that arthritis patients can continue to access and afford their health care. The Arthritis Foundation remains concerned that some provisions of the AHCA could create access barriers to the care people with arthritis. Read the letter here.
March 15, 2017
Arthritis Foundation Encourages Members of Congress to Increase Funding and Support for the Centers for Disease Control and Prevention (CDC) Arthritis Program
The Arthritis Foundation, along with seven other patient and provider groups, signed onto letters to the United States House of Representatives and Senate asking for both a strong topline appropriation for the CDC Division of Population Health, and an appropriation of $16 million to the CDC Arthritis Program in the FY18 Labor, HHS, and Education Appropriations bill. The letter calls on Members of Congress to increase in funding for the CDC Arthritis Program by $5 million to meet the growing demand and need for arthritis research in the United States. An estimated 78 million Americans will have arthritis by 2040. It is the leading cause of disability in the US, and it contributes to over $156 billion a year in direct medical costs and lost productivity. Read the letter to the Senate and the letter to the House.
March 15, 2017
Arthritis Foundation Comments on Proposed Rule on Orthotics and Prosthetics from the Centers for Medicare and Medicaid Services
Centers for Medicare and Medicaid Services (CMS) proposed a rule that would add requirements to the credentials needed for qualified practitioners to furnish and fabricate prosthetics and custom-fabricated orthotics, and for qualified suppliers to fabricate prosthetics and custom-fabricated orthotics. The Arthritis Foundation has submitted public comments to CMS seeking further clarification on certain provisions of the rule. The Foundation cannot support any provisions that could disrupt patient care and diminish quality of life for arthritis patients. Read the letter here.
March 13, 2017
Arthritis Foundation Shares Official Statement on American Health Care Act (AHCA)
Arthritis is a complex, chronic condition and people with arthritis depend on access to timely, ongoing care to control their disease. For many, access to health care is the difference between being disabled and being a fully functioning member of society.
The Arthritis Foundation believes people with arthritis should not fear that they will be unable to afford or access health care, including physicians, medications and other treatments. As such, we are sharing the principles we urge Congress to consider as it works towards health reform replacement legislation.
March 9, 2017
Arthritis Foundation Signs Letter to Support Reduced Out of Pocket Costs for Patients in Health Care Reform
The Arthritis Foundation joined 35 patient and provider groups to sign onto a letter from the Coalition for Accessible Treatments to urge the leadership on Capitol Hill to ensure healthcare legislation related to the Affordable Care Act (ACA) reduces out-of-pocket costs for patients and their families. The Arthritis Foundation is committed to continuing to protect patients with arthritis conditions attain access to the treatments they need. Read the letter here.
March 7, 2017
The Arthritis Foundation Submits Testimony in Support of Increased Funding for the CDC Arthritis Program
The Arthritis Foundation submitted written testimony to the House Appropriations Committee asking for an increase in funding for the CDC Arthritis Program – the only federal program dedicated solely to arthritis – and for sufficient funding for the National Institutes of Health to build on its investment in arthritis research. Read the testimony here.
March 3, 2017
Arthritis Foundation Sends Letter to Department of Health and Human Services (HHS) on Important Insurance Market Protections
The Arthritis Foundation sent a letter to HHS Secretary Tom Price, MD on a proposal he put out intended to stabilize the Affordable Care Act (ACA) Health Exchange market. The proposal would make changes to open enrollment periods and annual guarantees of coverage, among other things. The Arthritis Foundation stressed the need for people with arthritis to have personalized resources to help them make the best health plan decisions, and to have continuous, affordable access to the care that best suits their needs. Read the letter here.
February 17, 2017
Arthritis Foundation Submits Comments to The Institute for Clinical and Economic Review (ICER) on their Draft Evidence Report for their Review of Rheumatoid Arthritis Drugs
The Institute for Clinical and Economic Review (ICER) recently published a draft evidence report on the review of rheumatoid arthritis (RA) drugs. The Arthritis Foundation has provided written and verbal commentary to ICER on this report to help to ensure that patient voices are heard by ICER. It is imperative that input from patients and providers is considered and included during the development of a review for life changing treatments like those used for rheumatoid arthritis. Read the letter here.
Visit our page to learn more about the written and verbal commentary we have provided to ICER.
February 13, 2017
Arthritis Foundation Signs Letter to the Trump Administration in Support of Patient Centered Health Care Reform
The Arthritis Foundation, along with 200 other patient and community organizations, signed onto an I Am Essential coalition letter to the newly confirmed Secretary of Health and Human Services, Tom Price. The letter advocates for patient centric health reform legislation and urges the Trump administration to maintain the many important protections patients have gained through the Affordable Care Act that ensure they can access the care and treatment their providers prescribe. In the letter, the coalition supports accessibility, affordability, quality, responsiveness, choices and transparency, and innovative patient-care. Read the letter here.
January 30, 2017
ICER is a Boston-based non-profit organization that evaluates the clinical effectiveness and the cost of medical tests, treatments and delivery system innovations. Currently, ICER is reviewing rheumatoid arthritis therapies and will develop a report assessing their clinical effectiveness and value. ICER has also developed a value assessment framework to assess the cost and value of medications that many stakeholders have called into question. The Arthritis Foundation has provided written and verbal commentary and input to ICER at all available points so far in this evaluation process for RA drugs.
Third Quarter
August 29, 2017
Arthritis Foundation Comments on Medicare Physician Fee Schedule
The Arthritis Foundation submitted public comments to the Centers for Medicare & Medicaid Services (CMS) regarding the Medicare Physician Fee Schedule (MPFS) for calendar year 2018. The fee schedule is used by Medicare to reimburse physicians for services. The Foundation focused its comments on the current policy for reimbursing biosimilar drugs. Read the letter.
August 18, 2017
Arthritis Foundation Sends Comment to the Washington Insurance Commissioner Regarding Prior Authorization
On August 18, the Arthritis Foundation submitted comments to the Washington State Office of the Insurance Commissioner regarding their call for written comments on prior authorization gold card programs.
The Arthritis Foundation appreciates that the Washington Office of the Insurance Commissioner is considering this important issue and is soliciting public comments on optimizing prior authorization. A standardized process for prior authorization approvals through the use of a gold card program would greatly benefit all stakeholders in the health care system, and in particular the millions of patients across the state who rely on regular, timely access to treatment to manage their disease. Read the letter.
August 18
Food and Drug Administration Reauthorization Act Signed Into Law
President Trump signed the Food and Drug Administration Reauthorization Act into law, which reauthorizes critical user fee agreements allowing the Food and Drug Administration (FDA) to continue its mission of regulating drugs and devices. Every five years, Congress must pass legislation reauthorizing the fees that the FDA receives from drug and device companies. These fees help fund the FDA’s work to review and approve new medicines and devices. We are pleased that the act emphasizes the importance of including the patient's voice in drug development and decision-making. Our community of advocates look forward to continued opportunities to engage with the FDA.
The Arthritis Foundation was engaged with the FDA and lawmakers in reauthorizing the act for nearly two years. Our work included providing feedback on appropriate patient engagement as well as organizing a day in March for members of the Arthritis Foundation's Board of Directors to educate Congress on the importance of patient-centered strategies in the drug approval process.
August 16
Arthritis Foundation Offers Policy Recommendations to Strengthen Affordable Care Act
On August 16, the Arthritis Foundation sent a letter to House and Senate leadership describing four policy recommendations that can help strengthen and improve the Affordable Care Act. The Foundation sent the letter after Congress indicated it was renewing efforts to find bipartisan solutions. Read the letter.
August 2
Arthritis Foundation Joins 12 Patient Advocacy Organizations to Urge Bipartisan Solutions for Health Reform
On August 2, 2017, the Arthritis Foundation joined 12 other patient advocacy organizations to urge Congress to work together in a bipartisan manner to improve and strengthen the nation’s health care system. The statement emphasizes the need for Congress to work across the aisle to identify policy solutions that help stabilize the insurance marketplace and address affordability of health care for patients. Read the letter.
July 31
Repeal Bill Fails in the Senate. What Happens Next?
Last Friday, the Senate’s effort to repeal the Affordable Care Act (ACA) failed by a vote of 49 to 51. While it is unclear what Senate leaders will do next, a bipartisan group of lawmakers unveiled a plan today with the short-term goal of stabilizing the insurance markets. The lawmakers also proposed a number of ideas they believe can be accepted by a majority of the Members of Congress as long-term fixes. The Arthritis Foundation, along with many other patient advocacy groups, has long called for bipartisan solutions to strengthen current laws and will be working in the coming months to ensure that the issues people with arthritis face remain at the forefront of Congressional discussions.
July 20
Response to Congressional Budget Office Cost Estimates on Proposed Repeal and Replace Health Care Legislation
Congressional Budget Office recently released cost estimates on various versions of recently proposed health care repeal and replace legislation. We believe Americans deserve a transparent health care system that allows for informed decisions but does not put people at risk of losing coverage. Read our full statement here.
July 18
ACA Repeal Statement
The Arthritis Foundation joined 14 other nonpartisan patient and provider groups representing millions of Americans in issuing a statement imploring lawmakers to sit down in a bipartisan fashion and draft a new health care bill that will strengthen and expand access to affordable and adequate health care coverage. Read the statement here.
Fourth Quarter
December 20, 2017
Arthritis Foundation Urges Congress to Stabilize Insurance Market After Repealing Individual Mandate
On December 20, the Arthritis Foundation joined 16 patient advocacy organizations expressing disappointment that the individual mandate was repealed in tax reform legislation. In the absence of the individual mandate, we urge Congress to swiftly consider short- and long-term solutions to stabilize insurance markets. Read the statement here.
November 27, 2017
Arthritis Foundation Comments on The Proposed HHS Notice Benefits and Payment Parameters Rule for 2019
The Arthritis Foundation submitted comments to the Department of Health and Human Services (HHS) on the proposed Notice of Benefit and Payment Parameters for 2019. The proposal affects the insurance exchanges. Our comments focused on the need to maintain important patient protections under current law, such as preserving the essential health benefits. Read the letter. The Foundation also joined 138 other patient groups by signing on to an I Am Essential Coalition letter to express similar concern about the proposals. Read the coalition letter here.
November 17, 2017
Arthritis Foundation Comments on New Direction for CMMI
The Arthritis Foundation submitted public comments to the Center for Medicare & Medicaid Innovation (CMMI). The CMMI supports the development and testing of innovative health care payment and delivery models, and is seeking to chart a new direction that would empower patients and health care consumers. The Foundation focused its comments on the importance of placing patients at the center of the CMMI’s work, and ensuring their perspectives are incorporated into new models of care. Read our comments.
November 14, 2017
Arthritis Foundation Concerned by Individual Mandate Repeal in Tax Reform Package
Congressional leaders are expected to move forward with a repeal of the individual mandate in their tax reform legislation. The individual mandate, established by the Affordable Care Act, requires individuals to have health insurance or face a tax penalty. The individual mandate helps to stabilize the health insurance marketplace by assuring all Americans have access to affordable, quality care. The Arthritis Foundation released the following statement expressing concern about the latest development and the impact such a move could have on the stability of the health insurance marketplace. Read our statement.
November 2, 2017
Arthritis Community Applauds CMS Decision to Reverse Biosimilars Policy
Together with the American College of Rheumatology, National Psoriasis Foundation, and American Autoimmune and Related Diseases Association, the Arthritis Foundation applauds the Centers for Medicare and Medicaid Services (CMS) for its reversal in policy for how it reimburses for biosimilars in Medicare Part B. Read our joint statement and find out what it means now that this policy is reversed.
October 27, 2017
Arthritis Foundation Urges Patient-Centered Solutions as Cornerstone of Department of Health and Human Services Strategic Plan
On Friday, October 27, the Arthritis Foundation submitted comments to the Department of Health and Human Services in response to their Strategic Plan for Fiscal Years 2018-2022. In the letter, the Arthritis Foundation encourages HHS to continue working toward a goal of patient-centered health care solutions and modernizing the nation's health care system to protect Americans no matter where they may live across the country. Click here to read more.
October 26, 2017
Bipartisan Health Care Stabilization Act Would Benefit Patients and Families
On Thursday, the Congressional Budget Office (CBO) analyzed bipartisan legislation introduced by Senators Lamar Alexander (R-TN) and Patty Murray (D-WA), finding that the bill would result in savings to the federal government, no impact on insurance premiums for 2018, and no substantial change in the number of insured individuals across the country. The Arthritis Foundation is pleased with the CBO report and released a joint statement with seventeen other nonpartisan patient, provider, and consumer groups to urge Congress to take action on this legislation. Read the statement here.
October 19, 2017
Arthritis Foundation Praises Bipartisan Agreement to Provide Stability to Individual Insurance Markets
On Tuesday, October 17, Senators Lamar Alexander (R-TN) and Patty Murray (D-WA) announced a tentative bipartisan agreement to stabilize the individual health insurance markets. The legislation also preserves and supports key protections for individuals with preexisting conditions and is a positive first step to stabilize the individual insurance markets. The Arthritis Foundation joined 28 other patient and provider groups praising the return to bipartisanship. In its current form, the plan would maintain access to quality and affordable health care for all Americans. Read the statement here.
October 13, 2017
Answering Your Questions About the Latest Administration Actions on Health Care
On October 12, 2017, the Administration took two actions on health care that could affect coverage for people who have health insurance through the exchanges. President Trump signed an executive order that opens the door for the expansion of Association Health Plans, which aren’t subject to the same level of patient protections as required by the Affordable Care Act (ACA). Second, the Administration announced the discontinuation of cost-sharing reduction payments, which are payments to health insurers that help reduce out-of-pocket costs for low income people who purchase insurance on the health exchanges. Learn more about how these actions could impact patients here.
October 13, 2017
Arthritis Foundation Implores Congress to Fund Cost-Sharing Payments
On Friday, the Arthritis Foundation joined 11 other patient groups expressing disappointment that the Administration has decided to discontinue funding for cost-sharing reduction payments, which are made to insurers to help reduce out-of-pocket costs for low income people to purchase insurance on the health care exchanges. The letter urged Congress to take immediate bipartisan action to fund these payments. Click here to read further.
October 12, 2017
Arthritis Foundation & 17 Other Groups Express Concern About the President’s Executive Order on Health Insurance
On Thursday, the Arthritis Foundation, along with 17 other groups, expressed concern about how the Administration’s health care executive order would impact patient protections. The executive order opens the door to a weakening of important patient protections like essential health benefits, such as prescription drugs. The order also has the potential to price people with pre-existing conditions out of the individual insurance marketplace. Click here to read more.
September 26, 2017
Arthritis Foundation Pleased Graham-Cassidy Will Not Come Up for Vote; Urges Return to Bipartisanship
With limited support for the bill, Senate Majority Leader Mitch McConnell announced today the bill will not be called for vote. While we are pleased Graham-Cassidy will not move forward, we recognize that improvements must be made. We urge members of Congress to revisit the bipartisan process started earlier this month. Read our full statement.
September 25, 2017
Arthritis Foundation: Concerned Graham-Cassidy Could Jeopardize Care for the Arthritis Community
The Arthritis Foundation continues to strongly urge Congress to consider bipartisan solutions to strengthen the health care system. We believe that patients are the ultimate stakeholders in health care, and the Graham-Cassidy bill would jeopardize care for far too many. Read our statement on the legislation.
September 18, 2017
Arthritis Foundation Joins 15 Patient and Provider Groups to Oppose Latest Bill to Repeal and Replace Affordable Care Act
On September 18, the Arthritis Foundation joined over a dozen patient and provider organizations to oppose the latest bill to repeal and replace the Affordable Care Act. The bill was introduced last week by Senators Lindsay Graham (R-SC) and Bill Cassidy (R-LA) and does not adequately protect people with pre-existing conditions and does not align with the Arthritis Foundation’s legislative patient principles. The Arthritis Foundation continues to strongly urge Congress to consider bipartisan solutions to strengthen the health care system, most recently in a letter sent to Congressional leadership last month. Read the statement on the legislation.
September 8, 2017
Arthritis Foundation Sends Comments to the California Department of Managed Health Care Regarding Standardized Formularies
The Arthritis Foundation submitted comments on the proposed rulemaking regarding standardized formularies in California, as a result of the passage of Senate Bill 1052. Formulary transparency and adequacy make it easier for those with serious conditions to choose a plan that will cover the prescription medications they need. We were supportive of Senate Bill 1052 when it went through the legislative process, including sending letters and organizing patients to testify during hearings. Read our comments.